NinaP
Distinguished member
- Joined
- May 24, 2018
- Messages
- 151
- Reason
- Lost a loved one
- Diagnosis
- 04/2018
- Country
- GR
- State
- KO
- City
- Ptolemaida
I really dont know how to begin what to write. My mum was diagnosed wiith ALS in April 2018 after 4 months of tests and visits to every doctor there is. Finally she was diagnosed in a University hospital. We are a veru close family. 5 kids 9 grandkids. We are in a state of shock. Mum was an active strong never stop woman. She started to complain from the summer, about weakness and not being able to walk long distances as before. Then couldnt climb stairs. Then she couldnt get up from her couch. Then her foot dropped. Her left foot always was weaker since she had back issues. Me and my sister are her caretakers. Its a 24 hours nonstop job. She cant walk now.
Only her right hand works. We carry her around in a wheelchair. We are in a general panic, shock. We cant believe it. We are in denial then despair. There are no hospice or an organisation in Greece that we kmow off. The doctors described ALS as horrific. Anyway its been 4 months non stop of us searching and mum detoriating. I found this place and been reading symptoms and managed to notice the symptoms that we didnt saw then. How she would drink water and then cough. Her behavior being angry and having a bit of fits. We are terrified that we will get it too. I start fearing about myself. My left leg is weaker too for about 4 years now. I now wonder if its from ALS. I have noticed myself slurring words lately and being out of breath while walking, i must say i gained weught since i took leave of absence to care for mum. My sister says is from our anxiety and being so tired. I dont remember when i had a good night sleep the last 4 months. I dont know. So scared. Sad. Angry. Dissapointed. I forgot to write mum is 70 years old with no other medical problem. Im 39 years old. Im scared to even get tested seeing how much mum is going throu.
Only her right hand works. We carry her around in a wheelchair. We are in a general panic, shock. We cant believe it. We are in denial then despair. There are no hospice or an organisation in Greece that we kmow off. The doctors described ALS as horrific. Anyway its been 4 months non stop of us searching and mum detoriating. I found this place and been reading symptoms and managed to notice the symptoms that we didnt saw then. How she would drink water and then cough. Her behavior being angry and having a bit of fits. We are terrified that we will get it too. I start fearing about myself. My left leg is weaker too for about 4 years now. I now wonder if its from ALS. I have noticed myself slurring words lately and being out of breath while walking, i must say i gained weught since i took leave of absence to care for mum. My sister says is from our anxiety and being so tired. I dont remember when i had a good night sleep the last 4 months. I dont know. So scared. Sad. Angry. Dissapointed. I forgot to write mum is 70 years old with no other medical problem. Im 39 years old. Im scared to even get tested seeing how much mum is going throu.
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