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  1. M

    Sorry I am back here

    I am so sorry for posting again but I’m at a loss and just looking for some advice, I know no one can diagnose me here but I am terrified. I have been to my GP 3 times in the last 4 weeks and each time she has done manual muscle testing which appears normal. I am having constant breathing...
  2. B

    Back at it again

    Hello. Im back again with another thread because my other thread got closed. I feel disrespected because I posted my concerns just like everyone else about what Im experiencing and the people get to pick and choose who to be nice to or not. Well I had another emg a few months ago and it came...
  3. Nikki J

    MNDA BACK TO BASICS BLOG

    Basic science relating to ALS https://mndresearch.blog/category/back-to-basics/?fbclid=IwY2xjawEwXwNleHRuA2FlbQIxMAABHeyjD7xmdc31INDlviB-X6z1RpS_-Lp_2LzjS4X28L8IabkSt_ZysJRFmg_aem_Ke0T86bJWb4npdXc_BMU3w
  4. M

    Insurance denied claims from months ago - lactose free formula

    Hi Everyone, Just wanted to share what happened to us related to my husband’s Liquid Hope formula. Last fall I checked in with the hospital that dispenses the formula/supplies and they verified the coverage and told me it was covered and what the estimated cost would be. I did not double...
  5. P

    ProJenX ALS treatment gets back on track

    Some good news for Prosetin.
  6. C

    Back after 5 years - (merge old thread pls)

    Hello everybody and sorry for everyone who has to deal with ALS. I greatly appreciate this community and don't want to take away precious time from anyone, but I have some questions which I would like answers to from people who unfortunately have the disease. First of all I was never supposed...
  7. B

    Panic attacks

    Hi Everyone, Been a while since my last question. Hoping someone can help us out or guide us. My dad is in the late stages of ALS and is now living in a residence and having multiple panic attacks per day. This has been going on for the last 2 weeks and he is being brought back and forth from...
  8. A

    Hoping for a little reassurance

    Good evening, everyone, First off, I have been constantly amazed at the grace and promptness with which questions from anxious people here are answered, and in my time lurking over the last couple months these replies and stickied threads have been a huge resource. So thank you! I'm just...
    • AnxiousinVA
    • Thread
    • als atrophy back bed clinical cramping emg family family history grace holiday hope hyperreflexia leg pain neurologist questions running shoulder symptom symptoms twitch twitches twitching weakness worried
    • Replies: 3
    • Forum: Could this be ALS?
  9. lisa g

    I would like to introduce myself

    My name is Lisa and I was diagnosed 1 week ago with ALS. My neurologist is such a compassionate person, she cried with me while giving me the diagnosis . Her and her husband are a neurologist team. While they suspected ALS the EMG confirmed it. I would like to say that they were fantastic with...
    • lisa g
    • Thread
    • als back diagnosed diagnosis emg neurologist riluzole symptoms unknown
    • Replies: 16
    • Forum: Newly diagnosed
  10. M

    Genetic Testing

    Hi there, My family has been burdened with C9 - we’ve lost 6 amazing people in 2 generations, so far, including my mom, Godfather, and Gramma. I’ve struggled with anxiety over this disease for over a decade now. The anxiety presents itself in the form of symptoms and I trick myself into...
    • Momofone
    • Thread
    • als anxiety back family genetic genetic testing symptoms symptoms of als testing
    • Replies: 8
    • Forum: Familial ALS (FALS)
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