caretakers

From youralsguide. Obviously general but may be useful ALS Caregiving

The Million Word Gap Parents who take time to read aloud to their children are doing them a huge favor. Not only is it a memorable bonding activity, but it's also a way to jump-start a child's education and put them on the fast track to literacy. Many parents and caretakers know this...

I really dont know how to begin what to write. My mum was diagnosed wiith ALS in April 2018 after 4 months of tests and visits to every doctor there is. Finally she was diagnosed in a University hospital. We are a veru close family. 5 kids 9 grandkids. We are in a state of shock. Mum was an...

Hello, Before I get started, I want to thank all the PALS and the caretakers for answering these questions. I am a 25 year old male. I do not have a history of illness, and I also do not smoke/drink. I was in good shape 6’1 175lb, and exercised regularly before it all started. It all began...

Hi everyone First of all thank you all for keeping this alive with so much info available. This forum is one of the most empathic and caring ones I’ve ever seen. My prayers go to the ones who have been diagnosed and to their caretakers. I am apologizing for this post in advance, I know there...

Hello there! I tried searching for something similar than this but could not find a topic. I was working as a personal assistant for someone who had ALS. Shortly after I stopped working with this person, I got this post nasal drip. I went to a private practitioner beginning of this year...

Hello, I am new to this forum. I have been reading a lot of the threads and it seems like all of us CALS are dealing with pretty much the same things. I am the main caretaker for my mother, Audrey. My brother and I moved in with her after my father passed away a little over a year ago. Up...

Here's my vent of the week... I find myself being sensitive to some things that in the past would not have bothered me. I don't know if it is the sleep deprivation, the worrying or whatnot, but listen to my story. My sister in law has been very supportive throughout my PALS illness. If...

My mom was diagnosed on 04/02/2016 and on that date the only problems she had Way her right arm had weakness. She progressed very aggressively. To being completely paralyzed with in 6-8 months. She passed away last Thursday 04/13/2017 peacefully in her sleep little over a year after her...

Hi all, My sister-in-law (my brother's wife) is in the last stages of bulbar ALS -- only a bit of movement possible in fingertips and lower legs. She can still talk, but my brother can interpret only about half of what she says. She coughs and chokes on her saliva many times during the day. Her...