anxiety

  1. M

    I’m scared as I wait

    I’m a carrier of C9or72. I’m 42 f and have been asymptomatic for years, but live with major anxiety over ALS. In the last couple years I would say my anxiety has lessened, but any time something goes awry with my body I automatically worry about ALS. For a little while now, I’ve had muscle...
  2. DW7186

    Going at it alone with terrible anxiety

    I was diagnosed in oct 23 with flail arm syndrome. My left is totally paralysed,I was coping ok ish alone till infection and emergency surgery affected my right arm. Now I'm really struggling to function, I have a bath with shower in but every time I step into It I have a panic attack raising...
  3. M

    ALS anxiety as a past CALs.

    Hi all. I hope everyone is doing as well as they can. My PALs passed last October just 9 months after DX. Obviously I am grieving deeply. Lately I have developed what look and feel like fasiculations in various parts of my body (I am very familiar with them due to my partner). Sometimes they...
  4. PaulDavid

    Anxiety

    Hello. I’ve been here twice before (here and here). I was worried about twitching & perceived weakness in my arms and legs in May 2023. I received an EMG/NCS arm & leg in August 2023, where I was assured all was good. I had a follow up in Oct 2023, they repeated the NCS, I was told “Migraines?”...
  5. Jhettinger

    What is your drug of choice for anxiety ?

    just looking at what you all take
  6. G

    Anxiety and panic attacks while using NIV

    I use NIV, a Nippy 3+ a few hours every day. If someone is nearby I'm fine but when I'm alone I get anxious and panic to the point that I want the mask off but I'm unable to as I can't use my arms. Has anyone experienced this?
  7. tamilard

    Effective antidepressant?

    Forgive me for posting yet another time about my drug problems, haha. What are y'all taking? I was on Cymbalta for a few years, but I think it was aggravating my overheating issues during the summer. I went back to Prozac, which I had no issues with before. But this time it has been a ROUGH few...
  8. tamilard

    Severe overheating

    I’ve posted before mentioning this symptom. I now overheat really easily. I used to love summer and lying in the sun, but these past two summers have been brutal, so much so that I sometimes wanted to stop existing. If I’m too hot for more than 5 seconds, I start to get a panic reaction. I’ve...
  9. L

    On the verge of a breakdown ..all symptoms of Als

    A year ago I started feeling numbness and tingling in my leg and burning sensation in my head I did a brain MRI which showed corticospinal tract hyperintensities which are biomarkers of Als. Neurologists said no Als and related my symptoms to anxiety but symptoms exacerbated a lot.later I began...
    • Lavender
    • Thread
    • als anxiety arm brain breakdown breathing burning clinical crying diagnosis emg fear mri muscles slurred speech speech swallowing symptoms symptoms of als tongue weakness
    • Replies: 10
    • Forum: Could this be ALS?
  10. M

    Genetic Testing

    Hi there, My family has been burdened with C9 - we’ve lost 6 amazing people in 2 generations, so far, including my mom, Godfather, and Gramma. I’ve struggled with anxiety over this disease for over a decade now. The anxiety presents itself in the form of symptoms and I trick myself into...
    • Momofone
    • Thread
    • als anxiety back family genetic genetic testing symptoms symptoms of als testing
    • Replies: 8
    • Forum: Familial ALS (FALS)
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