A year ago I started feeling numbness and tingling in my leg and burning sensation in my head
I did a brain MRI which showed corticospinal tract hyperintensities which are biomarkers of Als. Neurologists said no Als and related my symptoms to anxiety but symptoms exacerbated a lot.later I began...
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Hi there,
My family has been burdened with C9 - we’ve lost 6 amazing people in 2 generations, so far, including my mom, Godfather, and Gramma. I’ve struggled with anxiety over this disease for over a decade now. The anxiety presents itself in the form of symptoms and I trick myself into...
Hi All,
I first want to thank you for the opportunity to voice my concerns as well as my apologies for any inconveniences.
To start, my symptoms began a year a ago with some twitching on my stomach. I did a quick google search and Lou Gehrig's Disease came up. At first, I quickly brushed it...
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Hi there everyone,
I'm a little bit nervous to post this, naturally, and do want to say I hope I'm not upsetting anyone in doing so. The people on here seem absolutely amazing and I'd be appreciative of anyone to give me their personal opinion on this. Thank you so much in advance.
Most...
Hello everyone thank you for reading this and I appreciate all the responses.
Back in October i really honed in on my twitches, as in I googled. I’ve always had my twitches but after googling of course my head was down in a spiral.
I’ve seen 3 PCP at my universal hospital and they all tested...
Hello everyone thank you for reading this and I appreciate all the responses.
Back in October i really honed in on my twitches, as in I googled. I’ve always had my twitches but after googling of course my head was down in a spiral.
I’ve seen 3 PCP at my universal hospital and they all tested...
Hi Everyone,
My husband is 35 years old and has lost a cousin, an aunt, 2 uncles, (all to ALS) and currently watches his mom battle the final stages of ALS. His family carries the c9 gene.
Upon visiting with his mom over Christmas (they live out of state) and spending a week surrounded by ALS...
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Thank you all for taking the time to read my post and I would appreciate any advice or knowledge you can pass on. I have read the "before you post sticky".
So this all started the the 1st week in Dec, I woke up 1 morning and had a persistent twitch in my left thigh. It prob went on 4-5 days...
This is my 1st post on this site and I want to say I really admire how nice and helpful everyone who responds on this site is. The fact that you take the time out of your days to help people who have questions is really remarkable.
I've been looking at posts on this site for a few months and...
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Hello to all,
I am concerned about a couple things going on, and hoping you guys would be able to help me, or give me some ideas on my next step.
Everything started about a 1.5-2 years ago. I flew up to Montana for the week to spend time with family. Had a good trip until the end when I got...