weakness

  1. J

    M29 Fasciculations, perceived finger weakness

    I posted here in 2021 about fasciculations all over my body. I did not have any noticeable weakness at the time. In the ensuing years I have felt fine. Fasciculations continued and I assumed I had BFS and moved on. I’m a little concerned again because I have definite clumsiness in my right...
  2. R

    Tiredness and perceived weakness

    Hi I am a previous poster (previous threads here and here) looking for some advice. Approx 7 months ago I began with widespread fasciculation, mainly concentrated in my calves and feet. I also suffered mild cramps in my feet. Long story short, after much delays I finally saw a nuero 3 months...
  3. M

    Gait belt with feeding tube?

    I have a new home health aide who is a firm believer in the gait belt. She's quite good with it, but it's hard to figure out where to put it -- between breasts and feeding tube? I can cram it in there, if you're patient. I currently have a dangler but am hoping to get Enfit button in a few days...
  4. Tomswife

    Riluzole and side effects

    My PALS, Tom, started Riluzole in August 2022 at the time of his dx. He has been declining each month. In February he was barely conscious, weak and drowsy all the time. I thought I would lose him fairly soon. I called the neurologist to discuss stopping the Riluzole. Are we getting only...
  5. L

    On the verge of a breakdown ..all symptoms of Als

    A year ago I started feeling numbness and tingling in my leg and burning sensation in my head I did a brain MRI which showed corticospinal tract hyperintensities which are biomarkers of Als. Neurologists said no Als and related my symptoms to anxiety but symptoms exacerbated a lot.later I began...
  6. J

    Multiple symptoms for months

    Well for starters I found this website in a state of my panic and have read others threads about similar symptoms in a search for reassurance. I have been very apprehensive about posting here because I know a lot of people are probably just overexcited or scared and have convinced themselves...
  7. S

    Proof that widespread twitching is related to ALS

    I recently came across this article and I'm freaking out now: https://www.ncbi.nlm.nih.gov/pubmed/11464925 Everything I've read on here says that widespread twitching is not indicative of ALS, but this article states otherwise. The worst part is that I had an emg last year that the neuro...
  8. M

    Rushed ALS Diagnosis ??

    First off, my heart goes out to all of you. You are so incredibly brave and generous with sharing your time, experience and support. My husband walked into a neurologist's office with symmetrical muscle weakness and walked out with a diagnosis of ALS. Some background - My husband is 51 and...
  9. A

    Hoping for a little reassurance

    Good evening, everyone, First off, I have been constantly amazed at the grace and promptness with which questions from anxious people here are answered, and in my time lurking over the last couple months these replies and stickied threads have been a huge resource. So thank you! I'm just...
  10. D

    calf weakness, twitching and hand symptoms

    Hi everyone. I've been having a lot of muscle twitches mostly in my calf areas and thighs but all over as well. Also my left calf feels weaker than my right even though I can still walk around on my tip toes and heels on both feet. Another thing I noticed is that it is difficult to straighten...
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