My brother, just 37-years-old, was recently diagnosed with familial ALS. We have one aunt that passed from ALS 15 years ago, but that was thought to be sporadic and ALS wasn't even on our radar.
As many with this horrible disease try to do, we are racking our brains to potentially understand...
sciencedaily.com/releas...
In people with amyotrophic lateral sclerosis (ALS), changes in neurons appear to activate immune cells. Lowering the inflammation could reduce the symptoms of the disease, according to a study led by Chantelle Sephton, a professor at Université Laval's Faculty of...
I’m back because a few months ago My Neurologist requested a genetics test. It came back abnormal therefore he sent for a muscle biopsy on my left bicep. The results came back that I have muscle lost/waste there. Fast forward a couple of weeks later. My arms and fingers are really weak. My...
Please see my earlier post below.
EMG Results
I will not press for assurance, merely hoping for insights/opinions and to give others a look at the process. Please merely delete this thread instead of blocking me if this poses any sort of rule break.
So, I have some updates. On 10/25 I had my...
Hi Everyone,
I would be grateful for your thoughts on on some symptoms. Long story short, Over the course of the past 6 weeks I was seen at Columbia's ALS center and received a second opinion at the Healy Center at Mass General. The consensus of the doctors at both facilities was to give me a...
I’m in my fourth year since my diagnosis and so far it’s been limbs only. Within the last month I’ve been experiencing increased shortness of breath especially when lying on my back. I’ve also developed a twitch in by diaphragm when I inhale. Are these symptoms typical for someone at my stage of...
A year ago I started feeling numbness and tingling in my leg and burning sensation in my head
I did a brain MRI which showed corticospinal tract hyperintensities which are biomarkers of Als. Neurologists said no Als and related my symptoms to anxiety but symptoms exacerbated a lot.later I began...
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speech
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symptomssymptoms of als
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weakness
Well for starters I found this website in a state of my panic and have read others threads about similar symptoms in a search for reassurance. I have been very apprehensive about posting here because I know a lot of people are probably just overexcited or scared and have convinced themselves...
I recently came across this article and I'm freaking out now:
https://www.ncbi.nlm.nih.gov/pubmed/11464925
Everything I've read on here says that widespread twitching is not indicative of ALS, but this article states otherwise.
The worst part is that I had an emg last year that the neuro...
First off, my heart goes out to all of you. You are so incredibly brave and generous with sharing your time, experience and support.
My husband walked into a neurologist's office with symmetrical muscle weakness and walked out with a diagnosis of ALS.
Some background -
My husband is 51 and...
2nd opinion
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dying
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family
family history
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father
heart
lead
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muscle
neurologist
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support
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weakness