sleep

  1. J

    Multiple symptoms for months

    Well for starters I found this website in a state of my panic and have read others threads about similar symptoms in a search for reassurance. I have been very apprehensive about posting here because I know a lot of people are probably just overexcited or scared and have convinced themselves...
  2. D

    Wholeheartedly Believe It's Bulbar Onset

    Hi All, I sincerely apologise for coming on here again. (Last here in 2012). I just wanted to put my thoughts down into words due to the worry it is causing. Firstly I’m a 34 year old male who is very overweight and leads a very sedentary lifestyle I have had a large variety of symptoms which...
  3. A

    Terrified of bulbar

    First I would like to thank everyone in this community that is being very supportive because I know your time is very valuable. I am a 25 year old male. It has been an ongoing battle with my mind for the past five years because ever since I turned 20 I would have twitches all over my body...
  4. A

    Frightened that I have ALS

    I know I'm 17 years old and it's very rare for me to have ALS on this age, but I still hope you hear me out on this. This all started with muscle twitching about 4 weeks ago. I felt it in my legs and in my back which was really weird feeling. I also noticed that when I was standing still my...
  5. Kristina1

    having to cough up secretions after lying down

    Lately I have to cough up secretions after laying down with the bipap all night. I am not sick and do not believe im getting sick. Is this because the bipap prevents normal clearing of secretions you might do in your sleep (throat clearing or grunting?). Basically im wondering if bipap is...
  6. G

    Father had Als concerned I do too

    Hello everyone, just want to say I am a firm believer of Jesus. So my symptoms started as having a hard time taking a deep breath and gasping for air. I went to the ER they took a chest xray and said it was asthma, they prescribed me a 6 day supply of steroids and sent me on my way. I took the...
  7. D

    trach questions

    I would like to hear from any pALS or cALS who are living with a trach. I understand the medical and technical side of it, but I am interested in hearing the nitty-gritty ramifications of living with all of that at home. The real stuff. How do you staff, are there lay person family members...
  8. S

    New caregiver

    So sad. Husband diagnosed end of December. He's very used to being in charge and making all the decisions. I am a RN/NP. So I know a bit about caregiving. He fights me on all the ways to do things. Slowly he is beginning to listen to me but it's frustrating. I only seem to cry when...
  9. T

    Symptom Questions from 35/m

    Hello, I hope you are well or as well as possible. Thank you for checking this thread and thank you for making this section of the forum. It must be very difficult for some members. Your patience for those of us with questions is greatly appreciated. I've refrained from ALS symptom-checking on...
  10. J

    Neudexta

    Hello everyone, I was wondering if neudexta is safe to take for an als patient that doesnt have pba. Ive managed to get the medication from someone in the states. My pals is taking amitriptyline pills and cbd oil both for sleep and to help with mucus problems. she is having difficulty talking...
Top

AdBlock Detected

We get it, advertisements are annoying!

Sure, ad-blocking software does a great job at blocking ads, but it also blocks some useful and important features of our website. For the best possible site experience please take a moment to disable your AdBlocker.

I've Disabled AdBlock
No Thanks