hours

  1. Tomswife

    Bipap- how decide hours on?

    I cant believe I have to post this question. Not because I dont trust this very trustworthy group, but because the pulmonologist should have given me some criteria. Tom is late stage ALS. He is rapid progressing so we have only had the bipap perhaps 4 weeks. Even when it arrived Tom only...
  2. richdees23

    Two days late and a couple hours short...

    These days, they all blend together, so I am acting like it's Tunesday... And happy hour has arrived. What good are some cold beers without some good music? Attached is a link to a song by Jason Becker. I believe I've mentioned him before, but this song just came on my Spotify playlist, so I...
  3. T

    Sinking - got a lifeline?

    Hi everyone. I apologize in advance for the length of this post. I’ve only been a registered user for less than 24 hours but am really impressed with the empathy and knowledge of posters and moderators. What a fantastic resource. I am on this site to not only utilize the nuts and bolts of...
    • Thomas3857
    • Thread
    • als atrophy back bed brain children cramping diagnosed driving early emg fasciculations father fatigue foot helpful hope hours medical muscle muscle fatigue neurologist reading symptoms tests
    • Replies: 57
    • Forum: Could this be ALS?
  4. C

    Children’s Sermon

    The minister started his Children’s Sermon with a question, “Who knows what a Resurrection is?” Without missing a beat a young boy says, “I don't know, but If you have one lasting more than 4 hours call your physician.” The pastor is still laughing.
  5. E

    Strange symptoms

    I want to preface my first post here to say that my concern has led me to investigate about ALS in a way that makes me feel a deep sympathy for everyone affected by ALS (whether in his/her own flesh, or through a family member.) I also want to help those who make this forum possible. I will...
    • EarthlingOne
    • Thread
    • als back bed diagnosis family family member finger fingers hours mobility muscle muscle wasting night reading ring finger symptom symptoms thumb twitches twitching video weakness
    • Replies: 11
    • Forum: Could this be ALS?
  6. chally

    Chally Erb flies free

    Chally’s spirit left his body as he slept in the early morning hours of Wednesday April 3rd. He continued to live his life to the fullest despite ALS wrecking his body bit by bit. This forum and all of you were so important to him. He talked about this community of friends every day. He was...
    • chally
    • Thread
    • als early free grace hours life
    • Replies: 37
    • Forum: In memory of
  7. S

    Feeling defeated

    Last thread Finally got into the neuro yesterday. After some tests he came back in and asked me and my gf to sit down. He explained to me that from the Emg he couldn’t deny the possibility of als. I almost lost it right there. I ha e only been ha i g symptoms for six months and he said given...
    • Scott2462
    • Thread
    • age als als? back clean emg crying emg hours second opinion shaking swallowing symptoms tests
    • Replies: 11
    • Forum: Could this be ALS?
  8. Clearwater AL

    The beach bar...

    Just something to read… in the “After 5 Forum Pub”. It took me a few days to put this together. My writing skills aren’t what they used to be. After Spring Break and for the rest of the year our beach bar often reminded me of a Chameleon. It was a side gig I got involved with. From opening...
  9. I

    Facial muscles

    I was diagnosed with progressive Bulbar Palsy I. January 2018. Although I could no longer swallow or speak by April of 2018, a PEG. helped and things were ok until Christmas of 2018. My limbs are weakening but I’m making the best of that. My biggest worry is my eyes. Even after sleeping well...
    • Idaho2790
    • Thread
    • bipap bulbar christmas diagnosed eyegaze eyes hours muscle muscles peg swallow tobii worry
    • Replies: 12
    • Forum: People with ALS (PALS)
  10. L

    Your avarage DIHALS?

    Dear forum users, I've read over several threads and you are so patient and kind to everyone that visits, I take my hat off to you. I tried my best not to post here, telling myself I am silly for thinking and regret the day I thought it would be a neat idea to Google my symptoms (this should be...
    • LaPizza
    • Thread
    • ache als als? back brain cured diet early family family history finger fingers heart hip hours mistake muscle pain stages symptoms twitch twitches twitching weakness work
    • Replies: 3
    • Forum: Could this be ALS?
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