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diagnosed

  1. J

    Awaiting diagnosis

    Hello. I started with foot drop about 6months ago. My left leg has gotten progressively worse and has moved to my R leg. Emg was bad showed decreased nerve conduction and muscle loss in both legs. I have brisk reflexes and positive Babinski on both sides. The neurologist agreed these...
  2. lisa g

    I would like to introduce myself

    My name is Lisa and I was diagnosed 1 week ago with ALS. My neurologist is such a compassionate person, she cried with me while giving me the diagnosis . Her and her husband are a neurologist team. While they suspected ALS the EMG confirmed it. I would like to say that they were fantastic with...
  3. J

    Please do not be too quick to say NO to possible ALS diagnosis

    About 3-4 years ago I came to this forum and asked the dreaded question "Do I have ALS". I had some fasciculations and cramping in my feet, balance issues, spasticity in both legs and slight speech changes. I was assured by members that my symptoms were NOT symptoms of ALS and I went merrily...
  4. KimT

    Eye Correction

    How many PALS here have had corrective surgery for eyes since being diagnosed? I had to cancel my consultation last week because my dental appointment ran on too long. I had lasik in 2001 but it regressed and now I wear progressive lenses again. I'm hoping to get either lasik enhancement or...
  5. N

    need for advice

    hello , my Najib and i have father who's been diagnosed with ALS recently my father had lost his right hand he can't move it any more , he cant walk without falling too , and now the other hand is going down . i have no clue what should i do to help him out . the big problem is that the...
  6. I

    Very Fast Progression

    I was originally diagnosed with progressive bulbar palsy in January of 2018. At that time we were told that there was an excellent possibility of having several years before things really became troublesome. In April 2018 I had a PEG put in and speaking was no longer a possibility. My legs...
  7. T

    Sinking - got a lifeline?

    Hi everyone. I apologize in advance for the length of this post. I’ve only been a registered user for less than 24 hours but am really impressed with the empathy and knowledge of posters and moderators. What a fantastic resource. I am on this site to not only utilize the nuts and bolts of...
  8. K

    Drastic change in breathing

    Hi everyone. My dad was diagnosed March 2018 with ALS. He has limb onset. His breathing, swallowing and talking have not been affected as of yet. ... so we thought. Today he had a breathing test. His score is December 2018 was 92 and today it was in the low 60s. That seems like a drastic change...
  9. S

    Significant artrophy left leg

    I am norwegian, so my english may be a bit wierd. I am a 33 year old woman. I was diagnosed with reumatoid arhritis in 2014. It has affected my left knee and ancle pretty bad. I have had multiple steroid injections, but the inflammation has been bad and ongoing for almost 5 year now. So I am...
  10. I

    Facial muscles

    I was diagnosed with progressive Bulbar Palsy I. January 2018. Although I could no longer swallow or speak by April of 2018, a PEG. helped and things were ok until Christmas of 2018. My limbs are weakening but I’m making the best of that. My biggest worry is my eyes. Even after sleeping well...
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