I’ve been doing lots of research and not getting good information from my doctors - and it’s gotten to a point where I’m getting extremely anxious/scared and just need help and opinions from others.
So I suffer from muscle atrophy and weakness in my left side (notably my left...
Hello everyone, my name is Greg. My heart goes out to everyone who has been afflicted with this disease and my thoughts and prayers are with all of you. Also, I want to thank everyone for giving g your time and efforts on posts such as ‘Do I Have Als’ your time and effort is greatly...
shortness of breath
I’ve been lurking for a while but have been hesitant to post because I don’t want to upset anyone by jumping the gun.
I’ll try and make this short but I just need some insight into what I’m experiencing. It started with twitching that I noticed going on two months ago. The twitches...
I apologize in advance for the length of this post. I’ve only been a registered user for less than 24 hours but am really impressed with the empathy and knowledge of posters and moderators. What a fantastic resource. I am on this site to not only utilize the nuts and bolts of...
Hi everyone. My dad was diagnosed March 2018 with ALS. He has limb onset. His breathing, swallowing and talking have not been affected as of yet. ... so we thought. Today he had a breathing test. His score is December 2018 was 92 and today it was in the low 60s. That seems like a drastic change...
Hello everyone, just want to say I am a firm believer of Jesus. So my symptoms started as having a hard time taking a deep breath and gasping for air. I went to the ER they took a chest xray and said it was asthma, they prescribed me a 6 day supply of steroids and sent me on my way. I took the...
I have come accross this forum and am astounded by the positive attitude and supportive nature of those diagnosed with this disease towards others. Not to mention the determination held by so many to continue living as normal a life as possible. I find you all truly inspirational.
Finally got into the neuro yesterday. After some tests he came back in and asked me and my gf to sit down. He explained to me that from the Emg he couldn’t deny the possibility of als. I almost lost it right there. I ha e only been ha i g symptoms for six months and he said given...
Like many others I have been visiting this message board after experiencing symptoms that led me to the internet - that led me here.
I have read many posts and many stories on this site and have much respect for this wonderful forum.
I will try not to make this a long and hard to read...
Well, damn. My local neurologist, after two months of elimination tests, has now indicated likely NMD, with ALS being the most likely candidate.
He basically kicked the can down the road and referred me to Dr. Pulley at Jacksonville Shands. We see him in late April for a second EMG and opinion...