family

Well for starters I found this website in a state of my panic and have read others threads about similar symptoms in a search for reassurance. I have been very apprehensive about posting here because I know a lot of people are probably just overexcited or scared and have convinced themselves...

First off, my heart goes out to all of you. You are so incredibly brave and generous with sharing your time, experience and support. My husband walked into a neurologist's office with symmetrical muscle weakness and walked out with a diagnosis of ALS. Some background - My husband is 51 and...

Good evening, everyone, First off, I have been constantly amazed at the grace and promptness with which questions from anxious people here are answered, and in my time lurking over the last couple months these replies and stickied threads have been a huge resource. So thank you! I'm just...

Hi there, My family has been burdened with C9 - we’ve lost 6 amazing people in 2 generations, so far, including my mom, Godfather, and Gramma. I’ve struggled with anxiety over this disease for over a decade now. The anxiety presents itself in the form of symptoms and I trick myself into...

I’m at my wits end here. PALS has almost no functional movement aside from head/upper torso and a few fingers. He uses his bipap about 20hrs a day. He can be left alone for an hour or so if he’s reading a book on his computer but he can’t move his hands so he’s stuck there if I’m not home...

Hello everyone, my name is Greg. My heart goes out to everyone who has been afflicted with this disease and my thoughts and prayers are with all of you. Also, I want to thank everyone for giving g your time and efforts on posts such as ‘Do I Have Als’ your time and effort is greatly...

Good evening. After reading the stickies, I am still left with some questions. Here’s where I am at— 1. I have had body-wide twitching for about 6 weeks. It seems to be mostly in my legs now, with some in my face , back, and arms (not often). The twitching occurs on both sides. Some days...

Hi everyone, I haven't posted in a while and thought I would come on and give you a life update. Things had been going really well for me and my family. I went back to school for my Masters in Education and in general starting taking care of myself. Well long story short, I went in for my...

I want to preface my first post here to say that my concern has led me to investigate about ALS in a way that makes me feel a deep sympathy for everyone affected by ALS (whether in his/her own flesh, or through a family member.) I also want to help those who make this forum possible. I will...

I will try to make this brief. Symptoms: *. Muscle twitching: started out in a few places about a month ago. Then increased all over. Now has decreased but in more specific spots (calves, thighs, abdomen, shoulder area). It seems almost as if the twitching is moving from lower body to...