I’m a 50 year old male and have been having twitching that started in my calves and now is randomly all over. I recently had an ncs and an emg. My emg came back normal but my ncs came back peroneal nerve neuropathy with no signs of entrapment. I walk with light limp because my top of foot hurts and side of knee. I’m worried about als and that’s all I can think about. Any ideas out there?
Hello everyone! I was here 2 years ago for twitching which started March 2022.
The twitching disappeared in 2023. Actually, I was dealing with the loss of a familiy member and if there were twitches, I did not notice these. This February 2024, I noticed my upper deltoid "thumps up" of "punches up" even at rest. Sometimes it is my knee. When I hit it or whack it, it stops. I am 55F already, Asian female. Thank you!
Hi Ricky, thank you for posting your story. I am going through almost the same exact thing. Even the twitching starting after investigating ALS. Wanted to know how you’re doing now? Do you still get cramps and twitches? How’s your anxiety?
Hi Vic. I am C9orf72 positive and my symptoms started just like you with right foot drop about 3 years ago. I now have both legs affected and pelvic muscles and am using a wheelchair. I'm trying a new cocktail of cheap available drugs based on my own research. Metformin is a MUST HAVE if you are C9. Laura Ranum's work is amazing and there is a trial ongoing in Florida. Also trying Terazosin and dutasteride. Vivienne