First off, my heart goes out to all of you. You are so incredibly brave and generous with sharing your time, experience and support.
My husband walked into a neurologist's office with symmetrical muscle weakness and walked out with a diagnosis of ALS.
Some background -
My husband is 51 and...
My wife sometimes at night or day depends on the position of complaining about breathing problems, always helps open the window, today I arranged for a oxygen concentrator. We don't know anout any result becouse she has stared use from 30min. Are there any other methods to improve breathing? I...
Hi everyone. I've been having a lot of muscle twitches mostly in my calf areas and thighs but all over as well. Also my left calf feels weaker than my right even though I can still walk around on my tip toes and heels on both feet.
Another thing I noticed is that it is difficult to straighten...
My husband shoulders are pretty much just bone now. He is side sleeper and is experiencing a lot of pain from laying that way. Is there anything we can try to protect his shoulder so he can still sleep on his side? We have tried wedges and that is so hard to get him in comfortable position...
First I would like to thank everyone in this community that is being very supportive because I know your time is very valuable.
I am a 25 year old male. It has been an ongoing battle with my mind for the past five years because ever since I turned 20 I would have twitches all over my body...
I know I'm 17 years old and it's very rare for me to have ALS on this age, but I still hope you hear me out on this.
This all started with muscle twitching about 4 weeks ago. I felt it in my legs and in my back which was really weird feeling. I also noticed that when I was standing still my...
Lately I have to cough up secretions after laying down with the bipap all night. I am not sick and do not believe im getting sick. Is this because the bipap prevents normal clearing of secretions you might do in your sleep (throat clearing or grunting?). Basically im wondering if bipap is...
I was originally diagnosed with progressive bulbar palsy in January of 2018. At that time we were told that there was an excellent possibility of having several years before things really became troublesome. In April 2018 I had a PEG put in and speaking was no longer a possibility. My legs...
I’ve been lurking for a while but have been hesitant to post because I don’t want to upset anyone by jumping the gun.
I’ll try and make this short but I just need some insight into what I’m experiencing. It started with twitching that I noticed going on two months ago. The twitches...
Good evening. After reading the stickies, I am still left with some questions. Here’s where I am at—
1. I have had body-wide twitching for about 6 weeks. It seems to be mostly in my legs now, with some in my face , back, and arms (not often). The twitching occurs on both sides. Some days...