I’m a little over two years post diagnosis and was recently denied insurance coverage for a shower/commode chair. I am a federal employee and have been very happy with coverage thusfar (GEHA). As I prepare to appeal the denial, I’m wondering what others’ experiences have been with insurance...
I was wondering if you could give me your opinion on my husband. For about a year he was having issues with his back. He tried physical therapy and epidurals. Nothing seemed to help. Fast forward to a couple of months ago...we both started noticing him limping. He noticed that his...
motor neuron disease
In February I noticed my right knee started to hurt after exercising in pool. Just sitting on a noodle and peddling it like a bicycle (same as I had been doing for last year). I also continued walking on a treadmill for 10 minutes (1/2 mile) each morning, sometimes on a slight incline to get...
Recently diagnosed w/ PLS & approved by VA 100% disabled, my husband is having difficultly accepting both. He knows he has health problems like difficulty speaking & very low on energy but he doesn't think he has PLS. We already received a 2nd opinion from the Mayo Clinic who agreed w/ the 1st...
I never in a million years thought I would be joining a group here, but turns out it is looking like this is the next phase of my life. I started noticing a little weakness in my right leg, especially getting into a vehicle for ie. Also around the same time, I kept wondering if...
I really dont know how to begin what to write. My mum was diagnosed wiith ALS in April 2018 after 4 months of tests and visits to every doctor there is. Finally she was diagnosed in a University hospital. We are a veru close family. 5 kids 9 grandkids. We are in a state of shock. Mum was an...
Thank you for adding me/us to the forum. In brief, here is our story: My husband lost his mother to ALS when she was 59 years old. She had one aunt, one uncle, and two first cousins who also passed from ALS. There were a couple other family members who may or may not have had early signs, but...
Hi, Folks. My name is Bill; I'm a new PALS, diagnosed in October, 2017, and also new to the forum. As I looked at some of the threads, I was impressed by the courage and compassion of the members here and wanted to introduce myself to the group.
My experience started with foot drop in the...
If I'm using the right words for that newest shots that came out last year 2017 that they give you to try to stop or slow down the progression of ALS.
$150,000 a year or something.
I didn't even pursue it or look into it carefully after the I got diagnosed with ALS in November 2017 at the Mayo...
(Still trying to learn how to move around this site, so I hope my comments are in the correct forum.)
I want to say Hello and how much I appreciate the depth of knowledge and the forthrightness that I read posted here. My diagnosis was last October, 2017, after spending about 18 months chasing...