denial

  1. J

    Insurance/Medicare Coverage for Shower-Commode Chair

    I’m a little over two years post diagnosis and was recently denied insurance coverage for a shower/commode chair. I am a federal employee and have been very happy with coverage thusfar (GEHA). As I prepare to appeal the denial, I’m wondering what others’ experiences have been with insurance...
    • Jay Q
    • Thread
    • chair denial diagnosis equipment info insurance medical medical equipment medicare shower
    • Replies: 5
    • Forum: Tips, tricks, and gadgets
  2. W

    Beside ourselves, please read.

    Hi All, I was wondering if you could give me your opinion on my husband. For about a year he was having issues with his back. He tried physical therapy and epidurals. Nothing seemed to help. Fast forward to a couple of months ago...we both started noticing him limping. He noticed that his...
    • worriedwife
    • Thread
    • advice back brain clinic cramps denial emg family family history foot insurance kids motor neuron disease mri muscle muscle biopsy neurologist physical therapy pressure second opinion symptoms test tests twitching weakness
    • Replies: 20
    • Forum: Could this be ALS?
  3. KimT

    Pain

    In February I noticed my right knee started to hurt after exercising in pool. Just sitting on a noodle and peddling it like a bicycle (same as I had been doing for last year). I also continued walking on a treadmill for 10 minutes (1/2 mile) each morning, sometimes on a slight incline to get...
    • KimT
    • Thread
    • autoimmune back balance brother cbd dementia denial diagnosed driving family family history father fell fibromyalgia friend heart love mri pain progression steroids support thc van vent work
    • Replies: 8
    • Forum: Rants and raves
  4. 6

    Not Accepting PLS Diagnosis

    Recently diagnosed w/ PLS & approved by VA 100% disabled, my husband is having difficultly accepting both. He knows he has health problems like difficulty speaking & very low on energy but he doesn't think he has PLS. We already received a 2nd opinion from the Mayo Clinic who agreed w/ the 1st...
  5. HopeNPrayer

    Probable Diagnosis

    Hello all, I never in a million years thought I would be joining a group here, but turns out it is looking like this is the next phase of my life. I started noticing a little weakness in my right leg, especially getting into a vehicle for ie. Also around the same time, I kept wondering if...
    • HopeNPrayer
    • Thread
    • 2nd opinion advice age atrophy back brain denial diagnosis emg falling foot foot drop grief hip insurance lead life lyme mnd muscle research stress symptoms weakness wes
    • Replies: 8
    • Forum: Could this be ALS?
  6. N

    Hello from Greece.

    I really dont know how to begin what to write. My mum was diagnosed wiith ALS in April 2018 after 4 months of tests and visits to every doctor there is. Finally she was diagnosed in a University hospital. We are a veru close family. 5 kids 9 grandkids. We are in a state of shock. Mum was an...
    • NinaP
    • Thread
    • als angry anxiety back caretakers denial diagnosed family foot hospice hours kids night reading sad scared sleep slurring words symptoms tests weakness wheelchair
    • Replies: 10
    • Forum: Newly diagnosed
  7. T

    Familial ALS

    Thank you for adding me/us to the forum. In brief, here is our story: My husband lost his mother to ALS when she was 59 years old. She had one aunt, one uncle, and two first cousins who also passed from ALS. There were a couple other family members who may or may not have had early signs, but...
    • Tkhalaska
    • Thread
    • ability advice als denial diagnosis drug trials early familial familial als family feeding feeding tube genetic genetic testing lead research respiratory story swallow symptoms testing trach ventilator weakness wheelchair
    • Replies: 17
    • Forum: Familial ALS (FALS)
  8. wmilo

    New to the Forum

    Hi, Folks. My name is Bill; I'm a new PALS, diagnosed in October, 2017, and also new to the forum. As I looked at some of the threads, I was impressed by the courage and compassion of the members here and wanted to introduce myself to the group. My experience started with foot drop in the...
    • wmilo
    • Thread
    • balance cals denial diagnosed diagnosis early emg foot foot drop radicava stages wanted
    • Replies: 11
    • Forum: People with ALS (PALS)
  9. D

    How many like myself have chosen not to even try to get the Radicava shots

    If I'm using the right words for that newest shots that came out last year 2017 that they give you to try to stop or slow down the progression of ALS. $150,000 a year or something. I didn't even pursue it or look into it carefully after the I got diagnosed with ALS in November 2017 at the Mayo...
  10. O

    I still don't really believe this diagnosis...

    (Still trying to learn how to move around this site, so I hope my comments are in the correct forum.) I want to say Hello and how much I appreciate the depth of knowledge and the forthrightness that I read posted here. My diagnosis was last October, 2017, after spending about 18 months chasing...
    • OutlanderALS
    • Thread
    • als atrophy brain breathing choking clinic coughing denial diagnosis emg foot hope medical movement mri pneumonia problem swallowing symptoms tests weakness
    • Replies: 14
    • Forum: Newly diagnosed
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