Latest activity
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lgelb replied to the thread I’m nervous and I need to stop googling. This site seems safe!.Glad to hear it and that your doc is being thorough. Sounds like anything that is still on the table is more treatable than ALS. All... -
lgelb replied to the thread Looking for input and guidance during long journey to diagnosis.Only in (bilateral) flail limb variants that you haven't described. On the chance that your sleep, relaxing, work, or driving...
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lgelb replied to the thread Wife not into what's best for her.To be fair, with most PALS + CALS couples, one or the other is on the forums, not both, and not just to avoid overlap reading. Often...
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Firefighter58 replied to the thread Power Lift Chair Part II.Hello folks I live in a nursing home and just bought a new wheelchair, up until now I have had a wheelchair supplied by als but I... -
lgelb replied to the thread Anyone here use (or who someone who uses) a power wheelchair and have trouble picking things up or reaching?.If you haven't ordered your power chair yet, including "anterior tilt" aka "Active Reach" provides more options if you still have some...
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lgelb replied to the thread Power Lift Chair Part II.I'm sorry about the lift chair. You will always want to have a floor lift charged up, or some other means of transferring, in case a...
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lgelb replied to the thread Looking for input and guidance during long journey to diagnosis.What you describe in terms of pins and needles is not how foot drop typically begins. Nor is back pain a typical ALS onset symptom. I'm...
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lgelb replied to the thread Deep depression.I'm very sorry, Hutch. As Nikki and Serenity say, there is life left to live. You will find the best ways to do that, together.
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lgelb replied to the thread Sleep with/because of lower back pain.If your bed doesn't "tilt," ("reverse Trendelenburg" feature), when you angle both your legs and head as much as you are, over time your...
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lgelb replied to the thread Could this be ALS? Worried.That's like saying a headache and dizziness is a brain tumor, when all you did was bump your head against the dryer. ALS does not...
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lgelb replied to the thread Could this be ALS? Worried.It would be very unusual for ALS to progress as you describe. I think your visit will be reassuring. Meanwhile, it's worth reassessing...
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lgelb replied to the thread Eating frustration.We used an oyster fork and baby spoon for self and assisted feeding, also a large bore bendy straw. You could build up a handle for...
