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  • affected
    affected replied to the thread Rapidly developing symptoms.
    I hope you can get some help to deal with this while the diagnosis is figured out. ALS is certainly off the table by all you have...
  • lgelb
    lgelb replied to the thread Rapidly developing symptoms.
    No weakness on clinical exam is certainly reassuring. If anything, your issues sound possibly post-viral. A single white matter lesion...
  • lgelb
    lgelb replied to the thread Could this be ALS?.
    If you had respiratory onset ALS, you wouldn't have normal pulmonary function testing results, and there would be some abnormalities on...
  • affected
    affected replied to the thread Choking on mucous.
    Sounds perfect - get the massage booked. Make sure you have some great food ready too - delish but healthy. Perhaps you can make a clear...
  • affected
    affected replied to the thread Could this be ALS?.
    They know what to test and how. 2 months ago you were sure you had limb onset. You need to let this go and ask your doctor what they...
  • lgelb
    lgelb replied to the thread CALS Roll Call Continued.
    Martha, you don't want a bandaid on the bridge that has adhesive and does further damage coming on and off Try "gentle paper tape" or...
  • affected
    affected replied to the thread CALS Roll Call Continued.
    MJT can he use a sip and puff at all some of the time? That would give his nose a break (no pun intended as we do not want a skin...
  • affected
    affected replied to the thread Choking on mucous.
    I'm so glad to hear things have settled! That's really given you a good measuring stick though. You knew the dairy was connected, but...
  • affected
    affected replied to the thread My emg test.
    really sorry to hear this
  • affected
    affected replied to the thread Trapezius Twitching.
    Try reading our sticky post again more carefully and then feel free to discuss your concerns through the links there. We can only ask...
  • affected
    No, I can assure you that what you describe is nothing like the speech issues we see in ALS.
  • affected
    affected replied to the thread Muscle Fatigue and Tightness.
    Oh wow I'm sorry about your mum and how much this is affecting you. Please realise that many people get scared of ALS in themselves when...
  • affected
    affected replied to the thread Really worried.
    Sorry you didn't feel that neurologist appointment went well. While it was not true to say you don't have ALS if you walked in, I am...
  • lgelb
    lgelb replied to the thread Muscle Fatigue and Tightness.
    Very sorry about your mom. Feel free to seek support about any aspect of her progression. She is welcome here as well. Tightness and...
  • KimT
    KimT reacted to Mary2's post in the thread Radical acceptance with Like Like.
    Marie, I can see how you would be tired, working, worrying about your husband and caring for the children. That is a lot to accept at...
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