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  • Laurie, I could use your help re a couple of things. I have been using an AVAPS for about 4 years, switched to a Trilogy(in AVAPS mode) about 1 year ago. During the night, the IPAP will go up to its set limit of 25 cm H2O, do I need to raise the limit or leave it as it stands? The other problem is that when it gets towards the limit, I start to get a lot of mask leaks. I have tried numerous masks and adjustments
    Hi Laurie i hope you are doing ok, healthy, happy/ I hope you keep safe. Are you aware of any connection about Herpes Zoster and ALS? Mum had it before she got sick and now my sister got it and we are terrified/. I know, i know, i am tiring you, but sometimes i feel you guys are the only ones i can talk to about my fears. I miss you.
    Hi there, im not sure im sending you a msg properly. I noticed you mention your husband had frail arm. Can you tell me how it progressed? And if it turned into classic als?
    Good morning, yesterday you answered my Post about my doubts in relation to chronic denervation in an emg in a muscle but I don't know how to answer the thread because it doesn't give me the option to answer, how could I do it? Would it be possible for me to send you my emg so that you could see it and comment on it? Thank you very much

    The below references are in response to the Sticky on PLS in the Medicare and other benefits section.
    Often a veteran has the appeal to the BVA. Tht is what I had to do. It has been 3 years.
    I have put some info on that here PLS and the VA. Hope you get it resolved soon.
    Hi Laurie
    I typed a message with problems I am having tolerating my trilogy lately along with entering my settings but when I went to post said 420 character limit. Is there another way I tap into your expertise. Thank you. Nancy
    Hi Laurie, sorry to bother you, but I wondered if you could email me the BIPAP notes I have seen mentioned in various posts. My brother has just received a machine and has had a not very good night. He is ringing the clinic but I wondered if there was something in your notes that might help. Many thanks, Sam
    I should mention it is a Resmed Bipap S9.
    @lgelb. GM was hoping you can answer question, Today, I had trouble walking on my left heel (could do it yesterday) but I experienced great pain feeling like no cushioning. I have not been dx with anything. In fact my last emg was normal (Mar) and my last clinical exam (Aug) was normal.
    I continue to experience issues with body wide twitching and muscle mass loss.
    Hi Laurie, wondering if you could take a quick look at my BiPAP settings? I had a miserable night of feeling like it was suffocating me (again). I don't understand. This link shows my settings and also my latest breathing test showing my MIP/MEP at 42/44:

    BiPAP settings
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