lgelb
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  • Hey I don't know to respond to conversations on this website. I'm knew and he hasn't full got diagnosed as the doctor is making us wait over 2 months for a specific ALS doctor
    Hi Laurie
    We have spoke a few times regarding frail arm. I have read threads regarding this and came across one with a 87yr old named Leland. I noticed that in memory, which i accidentally clicked, then recognized the unique name...leland passed away. Im curious here, he had only been diagnosed for 1yr and frail arm is typically slow. Do you know what happened here? Thanks. I was saddened to see that.
    Hi, sorry to bother you, but I have one quick request.

    I use this username on a lot of sites, and it's quite easy to find out who I am with a quick google search.
    Is it possible for you to change my username? Kinda don't want any future employers to see my health anxiety meltdown, and so on.

    Don't bother doing it if it's a lot of work.
    Laurie, I could use your help re a couple of things. I have been using an AVAPS for about 4 years, switched to a Trilogy(in AVAPS mode) about 1 year ago. During the night, the IPAP will go up to its set limit of 25 cm H2O, do I need to raise the limit or leave it as it stands? The other problem is that when it gets towards the limit, I start to get a lot of mask leaks. I have tried numerous masks and adjustments
    Hi Laurie i hope you are doing ok, healthy, happy/ I hope you keep safe. Are you aware of any connection about Herpes Zoster and ALS? Mum had it before she got sick and now my sister got it and we are terrified/. I know, i know, i am tiring you, but sometimes i feel you guys are the only ones i can talk to about my fears. I miss you.
    Hi there, im not sure im sending you a msg properly. I noticed you mention your husband had frail arm. Can you tell me how it progressed? And if it turned into classic als?
    Good morning, yesterday you answered my Post about my doubts in relation to chronic denervation in an emg in a muscle but I don't know how to answer the thread because it doesn't give me the option to answer, how could I do it? Would it be possible for me to send you my emg so that you could see it and comment on it? Thank you very much

    Martha
    The below references are in response to the Sticky on PLS in the Medicare and other benefits section.
    Often a veteran has the appeal to the BVA. Tht is what I had to do. It has been 3 years.
    lgelb
    lgelb
    I have put some info on that here PLS and the VA. Hope you get it resolved soon.
    Hi Laurie
    I typed a message with problems I am having tolerating my trilogy lately along with entering my settings but when I went to post said 420 character limit. Is there another way I tap into your expertise. Thank you. Nancy
    Hi Laurie, sorry to bother you, but I wondered if you could email me the BIPAP notes I have seen mentioned in various posts. My brother has just received a machine and has had a not very good night. He is ringing the clinic but I wondered if there was something in your notes that might help. Many thanks, Sam
    S
    Samkl
    I should mention it is a Resmed Bipap S9.
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