lgelb
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  • @lgelb. GM was hoping you can answer question, Today, I had trouble walking on my left heel (could do it yesterday) but I experienced great pain feeling like no cushioning. I have not been dx with anything. In fact my last emg was normal (Mar) and my last clinical exam (Aug) was normal.
    B
    Blacksheep62
    I continue to experience issues with body wide twitching and muscle mass loss.
    Hi Laurie, wondering if you could take a quick look at my BiPAP settings? I had a miserable night of feeling like it was suffocating me (again). I don't understand. This link shows my settings and also my latest breathing test showing my MIP/MEP at 42/44:

    BiPAP settings
    A search indicates you are THE person to help me with the settings on my new AVAP. It is a Respironics brand. I will see if I can figure out the settings. The issue is this: It feels like too much air and it wants me to breathe in a number of times to one exhale. It doesn't help--instead it makes me afraid to go to sleep because the air is choking me & I cannot exhale. :(
    Hi Laurie thankyou for your message I do understand the rules of the forum it is so hard when u have no one to discuss this with, my MRI came up with nothing so I am still trying to find out what is going on I really appreciate your response, skyvano
    Hi Laurie I want to say thanks to u as u always seem so kind I put my emg up as didn't understand it and am still worried ré the abnormal muscle with positive waves etc its concerning me that my other muscles could get affected over time i think people don't want me to start am other thread I jus feel v alone and having to wait so long for neurologist to discuss my doctor doesn't seem to no much about emg
    Hey Laurie,

    I tried to send you a message before but I figured i'd try 1 more time. 1st off I'd like to thank you for taking the time twice to respond to my posts and also, I'd like to apologize if I offended you in any way. My intention for posting that thread was not to offend or annoy anyone. I was just trying to gain more perspective in to whats going on with me. There is so much misinformation out there (sadly i've read most of it) and this site I felt offers genuine true knowledge and feedback. That being said, I can absolutely see how the DIHALS forum being quite bothersome. But I just wanted you to know I appreciate the fact that you took the time out of your day to respond to me.

    Thank you,
    Mike
    I just saw your private message. It's not a stroke because I can use my arm I just couldn't lift my fork off the plate. I am just confused because everyone said to trust my neurologists opinion that ot wasn't als after my clinic visit with him from 11 days ago
    Did you just PM me? My last post was deleted and it says you messaged me. My right arm weekness turned into right arm failure this morning with a fork
    Hey Laurie, yesterday we sent you the info and pictures of settings to your email but it must have been blocked so I am trying though the forum one picture is all IPad will allow well cant figure out how to send it on PM
    How can I get info to you?
    Chally
    Hi, There! You're so sweet. Thanks for helping, it's greatly appreciated. I think I got it right this time. (I hope so). It's about time scammers were tormented, too. I just got a phone call from someone trying to tell me social security want's me to call them. Baloney! They're going to scare a lot of elderly people. That's so MEAN. Hope people enjoy the link. I think James is great. Sic 'em James. Let me know what you think of it. Have a great day. B.
    HELP! HELP! My post got away from me. Can you delete my recent post with Lt on subject. I don't want people to use valuable time when there's nothing in it. I must have twitched and leaned on a key. Thanks much! Sorry! B
    When i used to bend down, my muscles used to hurt the next day, now i dont feel them as if they dont exist. If i bend my left leg immidiately hurts and cant stand my weight. I remain the same weight and its strange because i can feel i have lost weight on my legs and hands. Iam scared to go to the neurologist. So scared because i dont want to be sick at the same time as mum, its going to break my family down, already we are so broken because these years were supposed to be mums rest. Just wanted to tell you my whole story in order to get an idea.
    Now i cant because it starts hurting at once. So every year when the weather is changing or iam tired my leg hurts/feels very sore, weak, very weak, also when my period comes. I have come to get used to it. In Summer 2017 when my mums issues started we both went to the doctor to have tests since my leg never stopped bothering me. Of course my mum issues escalated very seriously and soon.As i already described in my posts in the general threads this time i feel different. I feeling like iam losing muscles, my legs have dissapeared, my hands, fingers have become very thin and my right leg which was very strong now is getting weak too. I get these feelings like something goes up and down in my legs when i walk my left leg slips behind.
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