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foot

  1. J

    Question to bulbar pals

    i'm still fighting. started with a limb onset, spread all over my body, but took only my right foot. by now. maybe my lungs are weaker. it started in oct. 2018. with bulbar - i lost taste completely, continued to cough. it was not having any problems with breath by then, and my cough progressed...
  2. J

    Awaiting diagnosis

    Hello. I started with foot drop about 6months ago. My left leg has gotten progressively worse and has moved to my R leg. Emg was bad showed decreased nerve conduction and muscle loss in both legs. I have brisk reflexes and positive Babinski on both sides. The neurologist agreed these...
  3. J

    Please do not be too quick to say NO to possible ALS diagnosis

    About 3-4 years ago I came to this forum and asked the dreaded question "Do I have ALS". I had some fasciculations and cramping in my feet, balance issues, spasticity in both legs and slight speech changes. I was assured by members that my symptoms were NOT symptoms of ALS and I went merrily...
  4. D

    Wholeheartedly Believe It's Bulbar Onset

    Hi All, I sincerely apologise for coming on here again. (Last here in 2012). I just wanted to put my thoughts down into words due to the worry it is causing. Firstly I’m a 34 year old male who is very overweight and leads a very sedentary lifestyle I have had a large variety of symptoms which...
  5. D

    Emg and twitching

    Hallo everybody, Greetings from Greece 🙂. Sorry for my English, try to understand. One question. How it could be clean the result of emg if I have all the time twiching in legs?? Question two . Curling fingers in foot.. it could be something else of als? The doctors here are awful. I spend...
  6. I

    Very Fast Progression

    I was originally diagnosed with progressive bulbar palsy in January of 2018. At that time we were told that there was an excellent possibility of having several years before things really became troublesome. In April 2018 I had a PEG put in and speaking was no longer a possibility. My legs...
  7. T

    Sinking - got a lifeline?

    Hi everyone. I apologize in advance for the length of this post. I’ve only been a registered user for less than 24 hours but am really impressed with the empathy and knowledge of posters and moderators. What a fantastic resource. I am on this site to not only utilize the nuts and bolts of...
  8. Gmr8691

    Thought i was getting better but now it seems worse

    So i posted a thread back in december about having bodywide twitching. I cant seem to find it now so i figured id start a new one with some concerns. Im still getting bodywide twitches that seemed to go away for a few weeks but now they are back and the ones in my right foot are way worse and...
  9. Bestfriends14

    Driving with double drop foot?

    Hello, I would like my husband to have his independence for as long as he can, however, he has double drop foot but wants to still drive. His right foot (gas and brakefoot) cannot go back on its heel and cannot go on its toes. He can still push with his right foot, but not as strong as before...
  10. Q

    Worth a follow up?

    37 years old. In May of 2017 I began having fasicularions and my reflexes were described as brisk. My EMG had this snippet: "Increased insertional activity, fibrillation, or positive sharp wave potentials suggestive of active denervation were noted in the bilateral FDI foot muscles in...
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