scared

  1. M

    I’m struggling and scared.

    Hi there, Please bear with me - this may be a longer post and I am awake at night and very scared. I’m a 41 y/o mom of 2 young children, carrier of c9orf72 and have been experiencing some symptoms. My family has been devastated by this disease; we’ve lost so many people, though none in my...
  2. Kfitz

    Scared pt. 3

    Both of my threads have been locked (found here and here), so here’s my third. I finally saw Columbia, since they never called for a cancellation and every time I called there was none. Out of all the doctors I’ve seen they’ve been the most disorganized and disappointing. Initially, when I made...
  3. Kfitz

    Scared pt. 2

    It’s been a while since posting, but my symptoms have progressed a bit. My thread isn’t allowing me to post my update, so I am creating a new one. I went to a new neuromuscular Dr. named Philip Ragone with Northwell. He said based on my clinical exam I have features of upper motor neuron...
  4. J

    Multiple symptoms for months

    Well for starters I found this website in a state of my panic and have read others threads about similar symptoms in a search for reassurance. I have been very apprehensive about posting here because I know a lot of people are probably just overexcited or scared and have convinced themselves...
  5. S

    Proof that widespread twitching is related to ALS

    I recently came across this article and I'm freaking out now: https://www.ncbi.nlm.nih.gov/pubmed/11464925 Everything I've read on here says that widespread twitching is not indicative of ALS, but this article states otherwise. The worst part is that I had an emg last year that the neuro...
  6. J

    Lift Chair Question

    For those of you with Golden lift recliners, can I get my PALS into it with a hoyer? I have been exclusively using a hoyer to transfer him for a while now. I'm pretty sure he could not stand on his own even with support, even just for a pivot transfer. (I'd be scared to death to even try.)...
  7. D

    Frontolobe dimentia.

    heredity question Hello everyone. My first post. I'm Deb from Australia. scared to say much right now. I'm actually waiting for a diagnosis and "incidentally discovered my grandmother died of pneumonia secondary to ALS in 1970. I read in Google scholar that not all people with the faulty gene...
  8. C

    Please Help with symptoms

    Hey everyone, I’ve been doing lots of research and not getting good information from my doctors - and it’s gotten to a point where I’m getting extremely anxious/scared and just need help and opinions from others. So I suffer from muscle atrophy and weakness in my left side (notably my left...
  9. Ande

    Frightened that I have ALS

    I know I'm 17 years old and it's very rare for me to have ALS on this age, but I still hope you hear me out on this. This all started with muscle twitching about 4 weeks ago. I felt it in my legs and in my back which was really weird feeling. I also noticed that when I was standing still my...
  10. G

    My symptoms

    Hello everyone, my name is Greg. My heart goes out to everyone who has been afflicted with this disease and my thoughts and prayers are with all of you. Also, I want to thank everyone for giving g your time and efforts on posts such as ‘Do I Have Als’ your time and effort is greatly...
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