Momofone
Member
- Joined
- Jul 10, 2015
- Messages
- 17
- Reason
- Lost a loved one
- Diagnosis
- 00/0000
- Country
- CA
- State
- ON
- City
- Toronto
I’m a carrier of C9or72. I’m 42 f and have been asymptomatic for years, but live with major anxiety over ALS. In the last couple years I would say my anxiety has lessened, but any time something goes awry with my body I automatically worry about ALS.
For a little while now, I’ve had muscle spasms in the connector on my right tricep (above my elbow). I’ve been seeing a massage therapist since last summer as I had a random back injury. In the last couple months, I started getting fasciculations mostly in the tricep area, and a bit in the bicep but closer to my elbow. I started intermittent fasting about a month and a half ago - my massage therapist thinks it could be an electrolyte imbalance. I eat enough salt in my eating window so I don’t think that’s it.
I’ve had fasciculations for 10-15 years. But the triceps fasciculations feel deeper. In the last couple weeks I’ve notice spasming in that connector muscle.
You know when you wake in the morning and stand and do a big stretch reaching to the ceiling with your arms? When I do that, it spasms. When I bear my weight on my hands, it spasms. But I have no perceived weakness that I’ve noticed, anyways.
I messaged my neurologists secretary to get in to see him, but I’m so scared as I wait to hear back. I suggested doing an EMG/Nerve conduction test. I had one like 15 years ago, and think it would be good to do again.
My kids are so young and I don’t want this to be my fate just yet. I have lots of life to live still and I’m really really scared for them, for me, for my husband. And I keep it all to myself. I’m struggling.
I’m not sure why I’m posting here, other than to vent and get it out of me. I’m pretty private with my anxiety. I know it makes other people worry too and I don’t want that for my family.
Pray for me. I need hope. We’ve lost so many to ALS in my family and I don’t want to be another name on that list.
For a little while now, I’ve had muscle spasms in the connector on my right tricep (above my elbow). I’ve been seeing a massage therapist since last summer as I had a random back injury. In the last couple months, I started getting fasciculations mostly in the tricep area, and a bit in the bicep but closer to my elbow. I started intermittent fasting about a month and a half ago - my massage therapist thinks it could be an electrolyte imbalance. I eat enough salt in my eating window so I don’t think that’s it.
I’ve had fasciculations for 10-15 years. But the triceps fasciculations feel deeper. In the last couple weeks I’ve notice spasming in that connector muscle.
You know when you wake in the morning and stand and do a big stretch reaching to the ceiling with your arms? When I do that, it spasms. When I bear my weight on my hands, it spasms. But I have no perceived weakness that I’ve noticed, anyways.
I messaged my neurologists secretary to get in to see him, but I’m so scared as I wait to hear back. I suggested doing an EMG/Nerve conduction test. I had one like 15 years ago, and think it would be good to do again.
My kids are so young and I don’t want this to be my fate just yet. I have lots of life to live still and I’m really really scared for them, for me, for my husband. And I keep it all to myself. I’m struggling.
I’m not sure why I’m posting here, other than to vent and get it out of me. I’m pretty private with my anxiety. I know it makes other people worry too and I don’t want that for my family.
Pray for me. I need hope. We’ve lost so many to ALS in my family and I don’t want to be another name on that list.
