scared

  1. M

    Parent with C9 ALS

    Hi, My mom recently got diagnosed with ALS and tested positive for the C9 gene. I am going to get tested soon- I am pregnant and due in a couple of months now. But I just need to know either way. I am driving myself crazy thinking that everything is the start of ALS, but I know I am stressed...
  2. S

    EMG results

    Hello guys...I am a 28 years old and I started having muscle twitches in December 2018. I had a EMG today and it showed fasciculations in every muscle, but also fibrillations and polyphasics in some muscles. My doctor was worried and would like to repeat the test in two months....I am scared...
  3. J

    Can't control my fear.

    Hi everyone. I know this isn't an anxiety or fear forum. But I have some concerns that I am really worried about and confused about due to Google. First off, I'm so sorry for anyone going through this disease- I don't want anyone to be wasting their time reading this because I'm not worth it...
  4. W

    Worried Mother

    Hello my name is kelly and my son posted on these forums a few months ago Twiztid Tragedy was his name. So you know his story well yesterday he had his Follow Up and 2nd EMG and the EMG report says he Has MND as the Primary Dx and The Diffrental Dx is ALS or Multi-Level Radiulapthaies. Is there...
  5. M

    So worried

    Hi all, I've been having some issues and I'm terrified.. It started about 3 mos ago, noticed twitching in my eye then in my chest, about a month ago I noticed that my right foot and two fingers on my right hand felt "off" my foot felt heavy.. Then twitching started all over my body constantly...
  6. K

    Waiting on Neuro, scared.

    Hi, Thank you in advance for your time. I've read many of the posts here and I am in a similar situation. My grandmother died at age 76 from ALS, and it has given me a lot of anxiety over the past 10 years related to it. I also had a more distant relative (a cousin of my father) who I believe...
  7. S

    My Dad was diagnosed a year ago and I’m looking for some support

    Hello all, My father was first diagnosed with lower motor neuron ALS roughly one year ago. He got the official diagnosis in September 2018 when they were finally certain that it was not CIDP. Within the week my Dad was diagnosed, I accepted my first job out of graduate school and moved 2 and a...
  8. D

    Does this sound like ALS? Is this a helpful EMG?

    Hi! First of all I'd like to thank you all for accepting me, and also I'd like to acknowledge all of you as true warriors. Helping others while you're getting through all the stuff you have to live, is truly remarkable. May God bless all of you. I hope you could help me out. I'm a 25 y.o. male...
  9. M

    Young male bulbar symptoms

    I posted two years ago but was unable to post on that thread but it had been closed. During the time between then and now for the most part I was able to move on from my fears of ALS. However that has changed recently as I have developed a mild slur, not noticed by normal folks but was...
  10. W

    My dad is still kicking, but recently got the flu.

    Hello, Sorry I've been away from the forum for a long time. Two teenagers, one baby, and full time care of my dad (shared with my mom) was tough.. And then... We decided to move from the USA to Finland. It was my husband's idea actually... He dragged us in June 2018 because he thought we could...
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