hansvin
Member
- Joined
- Dec 2, 2015
- Messages
- 13
- Reason
- Loved one DX
- Country
- IND
- State
- Delhi
- City
- Delhi
Hi,
Today I have started to believe that my mother might have ALS (still in a bit of denial). She has lost the ability to walk as he other leg is also affected now including the ability to easily turn sides. So far, she has problems in lower limbs only (somehow I am just hoping it will stay there).
We are in India and here are our issues. If you have any ideas, respond to these points. We don't have a concept of ALS clinic. So the comprehensive treatment and care is impossible. I have researched everything I can on the internet and trying out different things. So I am asking few questions here:
Your thoughts on what else can she try/remove?
Also here are few things I am doing:
1. Planning to get a swallow tattoo for hope (my mother's name means Hope). This is inspired by Dr. Bedlack's story which Nikki posted. Thanks very much for that.
2. Work towards awareness in India. Once I have some financing, I would like to have an ALS clinic in India so people like me have direction. Wish me luck.
3. Pray that the science finds solution to this soon so we no longer need this forum.
Thanks very much everyone for reading and being here.
Vineet
Today I have started to believe that my mother might have ALS (still in a bit of denial). She has lost the ability to walk as he other leg is also affected now including the ability to easily turn sides. So far, she has problems in lower limbs only (somehow I am just hoping it will stay there).
We are in India and here are our issues. If you have any ideas, respond to these points. We don't have a concept of ALS clinic. So the comprehensive treatment and care is impossible. I have researched everything I can on the internet and trying out different things. So I am asking few questions here:
Your thoughts on what else can she try/remove?
Also here are few things I am doing:
1. Planning to get a swallow tattoo for hope (my mother's name means Hope). This is inspired by Dr. Bedlack's story which Nikki posted. Thanks very much for that.
2. Work towards awareness in India. Once I have some financing, I would like to have an ALS clinic in India so people like me have direction. Wish me luck.
3. Pray that the science finds solution to this soon so we no longer need this forum.
Thanks very much everyone for reading and being here.
Vineet