assistive devices

  1. J

    Remote Control Assistive Devices for Home

    I have received several remote control devices that allow me to control several light switches in my home as well as open/close my overhead garage door. These devices are manufactured by a company called GoControl [commercial link removed]. These devices use a Z – wave hub or controller which...
  2. Y

    Breathing issues prompting move to skilled care facility. We're scared!

    Hey all, Have only posted once or twice before. I'm the caregiver for my partner, Mike, who has been diagnosed since August 2011. He uses a power chair and a feeding tube (although he's fortunately still able to enjoy a beer every night), a sip and puff respirator as he needs, and we use a...
    • yutopia
    • Thread
    • ability assistive devices baclofen bipap breathing breathing issues caregiver chair clinic cry decline diagnosis early equipment feeding feeding tube guilt heart issues night paralyzed power problem scared sleep support symptoms
    • Replies: 22
    • Forum: Current caregivers
  3. C

    assistive technology

    My father was recently diagnosed with bulbar onset ALS. He is progressing extremely fast. He can no long talk, eat, or swallow. His right hand is very weak. My questions is are there any assistive devices for communication that are free or at least financially feasible?? He is retired with...
    • ctollar
    • Thread
    • advice als assistive devices bulbar bulbar onset communication diagnosed father free money onset questions swallow technology
    • Replies: 4
    • Forum: Newly diagnosed
  4. S

    Physical and Mental Exhaustion

    I know PALS are not supposed to fall... But last night my PALS was in the floor 3 times. I hate this d*** disease. He absolutely won't use any assistive devices until absolutely necessary. This morning, I told him... You have to make some changes. My back is really hurting. I must learn to...
    • soonerwife
    • Thread
    • assistive devices back exhaustion hoyer lift night pwc transfer transfer board
    • Replies: 16
    • Forum: Current caregivers
  5. D

    Updates and question about stride progression

    Good morning! (or Good night, depending on where in the world you are ;) ) I feel like I am finally getting somewhere in my diagnostic journey. I have "changed" my health care to a different region of Spain and after an appointment in general neurology, have been derived to the neuromuscular...
    • dancergymnast
    • Thread
    • assistive devices back bed diagnosed falling health hours neurologist neurology night physical therapy pls problem problems progression question about symptoms symptoms therapy thumb work
    • Replies: 11
    • Forum: Primary lateral sclerosis
  6. S

    Old and Diagnosed

    I am a 64 year old male and I was diagnosed with ALS in January 2016. My primary symptoms have been a progressive weakness in my arms. While the EMG says the legs are also weakening, I do not yet feel that. I also at present do not have any "upper motor neuron" symptoms. I have tried to get...
    • silas19
    • Thread
    • als assistive devices cell chair clinical diagnose diagnosed early emg exercise love motor neuron symptoms progressive weakness shower stem cell stem cell therapy supplements symptoms therapy weakness
    • Replies: 5
    • Forum: Newly diagnosed
  7. H

    I need help with few things

    Hi, Today I have started to believe that my mother might have ALS (still in a bit of denial). She has lost the ability to walk as he other leg is also affected now including the ability to easily turn sides. So far, she has problems in lower limbs only (somehow I am just hoping it will stay...
    • hansvin
    • Thread
    • ability acupuncture als assistive devices awareness bed cell chair clinic denial drugs family fasciculations free hope hours ideas planning progression questions reading riluzole stem cell stem cell therapy story supplements swallow tattoo treatment wanted
    • Replies: 7
    • Forum: General discussion about ALS/MND
  8. C

    More pump questions

    Hey! Had a follow up appointment with my neuro today and I'm going for a consultation for the baclofen pump. Of course I looked up past threads and some people (mike in Maine I think was one) had very positive things to say about it. Anyone who has had it for a year or more--is it still working...
  9. Q

    Favorite Assistive Devices for Text to Speech

    Its been several years since I made inquiries about "Text to Speech" assistive devices for PBP. I'd like to start a discussion related to several questions. 1) Do people have favorite devices for use when you can still type on a keyboard? 2) What is their favorite supporting software for...
  10. N

    Planning for the future

    With the new Medicare rules it seems as if Medicare will be almost worthless when it comes to extending any quality of life for ALS patients. Do I understand correctly that we will no longer be able to get any help with devices that give us some freedom like power wheelchairs or assistive...
    • nebrhahe53
    • Thread
    • als assistive devices cost equipment life medicare mobility planning power power wheelchairs quality of life speech wheelchairs
    • Replies: 0
    • Forum: Newly diagnosed
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