1. S

    Proof that widespread twitching is related to ALS

    I recently came across this article and I'm freaking out now: Everything I've read on here says that widespread twitching is not indicative of ALS, but this article states otherwise. The worst part is that I had an emg last year that the neuro...
  2. W

    Fascinating Fasics

    Thanks to anyone reading or replying to my thread. I have been lurking on here for a few months and have restrained myself from posting. Having witnessed the patience and compassion shown by the sites members and my growing concerns, I hope you don’t mind me posting. I started with...
  3. KimT

    Hemorrhoid Banding Procedure - CALS/PALS

    OK, This has been going on for over a year and I vowed to take care of my teeth first, then PT for my knee and torn rotator cuff. Has anyone had experience with removing internal hemorrhoids via banding them off and letting them die and fall off? It doesn't matter if you're a PALS or CALS. I...
  4. T

    Any magical Safe Cures out there ?

    Hi and low I have searched on all thees forums and more looking for some magical safe staller or Cure, I have a huge list of supplements mostly herbals I have tried in many combinations but alas not as yet, I will list all my tries. I have had Nettle in my head for years and Teasel I knew not...
  5. M

    MND diagnosed in March 2018

    Hi, My father in law Age -73 years diagnosed with Bulbar symptoms in March 2018. He was feeling slight dragging of foot and speech issue for more than a year, but after several doctors visits he was adviced for some voice exercises with reason of 'sound box issue due to age' but after more...
  6. J

    Detoxi(fi)cation with green ventilated clay

    hello, many people tried many things to slow down als. i wonder - did anybody triy detoxication with green ventilated clay for oral use through 3 weeks? i'm on rilutek for one month (started on july 1st) and i obviously have to pause it, cause clay (hidratized alumosilicate) and rilutek goes...
  7. C

    Please share your experience at ALS clinic - very frustrated!

    Hi all! We’ve only been to our ALS clinic once to meet neurologist and clinic nurse which was two weeks ago. During the visit we inquired about a couple trials my Dad may be interested in as well as treatments Riluzole and Edaravone. The Neurologist and Nurse said they could give us no advise...
  8. Scotiaspirit

    Partnership Treatments

    I was reading about an organization called ALSWORLDWIDE dot org who purports to work with ALS Patients, their families and healthcare providers. One of my local PALS friends has parted with a considerable sum of money, for some of their supplements and treatments. I have read somewhere where...
  9. J

    Apetite and nonbulbar ALS

    after taking supplements (D, E, B, A, coq10, L serine, resveratol, lithium orotate, magtein, selen, kreatine, ALCAR, hydrolized proteine shakers, bcaa, probiotics etcetc) have no chance to eat normal. therefore i stopped to go to toilet. at least, not often as i used to do. just urgent pee when...
  10. A

    Talk Me Off the Ledge

    Hey everyone. Thank you for taking the time to read my post, I am so truly sorry to the people that have to live with this horrible disease. I am a 23-year old male, caucasian. About four days ago I noticed uncontrollable twitching in my left leg as I was going to sleep. Twitching isn't a new...
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