My daughter just forwarded this to me. Of course she would like to think this is hopeful. So, I am wondering what others may think about...
My husband is 35 years old and has lost a cousin, an aunt, 2 uncles, (all to ALS) and currently watches his mom battle the final stages of ALS. His family carries the c9 gene.
Upon visiting with his mom over Christmas (they live out of state) and spending a week surrounded by ALS...
c9 gene anxiety
Like many others I have been visiting this message board after experiencing symptoms that led me to the internet - that led me here.
I have read many posts and many stories on this site and have much respect for this wonderful forum.
I will try not to make this a long and hard to read...
Hello: I am a cALS for my husband. I have questions about the Brainstorm Cell Therapeutics (Trial of NurOwn for ALS):
1) What are the pros and cons of this trial?
2) It seems to have promising anecdotal info. -- why aren't more people doing it?
3) When will results be published?
4) When could...
As some of you may know, Brainstorm granted one PALS free access to NurOwn as a 'thank you' for the work he did on Right to Try. He is not in a trial but is being given the course separately.
His update is on Facebook -- matt.bellinski.7
Mod note -- not linking directly due to fundraising...
Previous thread here.
Just got my second Emg. This one was done at a ALS specialist hospital accredited by the ALS Association. The Dr was extremely thorough and explained everything he did. It took about 2hours and he checked every where except my eyes! Conclusion was Mildly...
I want to thank you all in advance, and let you know that I will not dispute your suggestion (and only welcome it) if you don't think ALS is a possibility in my case. I also want to let you know that my thoughts are with each of you that have been diagnosed or have had a family member diagnosed...
I first started having symptoms 3 years ago. It started with a little left leg weakness and fatigue. My PCP said I was just getting old and that being tired was a symptom of every disease.
Over the course of 3 years my left leg got weaker and weaker, and the fatigue continued. My PCP...
First of all, I am really grateful for all the help of you, PALS and CALS, provide to us that are still lost in our medical conditions, and I respect you immensely for that.
In August, my first symptomes occured. After a spasm that woke me up, my middle finger on my right foot started...
The long-awaited mandatory reporting requirement has kicked in, thanks to Senator Duckworth. So if you experience any issues with airline wheelchair handling, please make a report, which will drive potential funding to reduce such incidents.
Note that there is a separate complaint category for...