1. P

    ProJenX ALS treatment gets back on track

    Some good news for Prosetin.
  2. Tomswife

    The Importance of Early Diagnosis and Treatment

    ALS, as we know, does not start with diagnosis. I get frustrated when asked the date of PALS diagnosis. Studies have shown a presymptomatic stage of ALS. And, those fleeting pre-symptoms are the real beginnings. Many PALS can identify the symptoms that caused them to seek medical advice. For...
  3. P

    B1 thiamine derivative as treatment I’m not sure if links are allowed. Anyways there are a few articles just published this week claiming “Russian scientists find cure for Stephen Hawkins disease” if you search, very sensationalist. When you hear Russian...
  4. Doglady

    Bacteria and Fungi Link to ALS Patients My daughter just forwarded this to me. Of course she would like to think this is hopeful. So, I am wondering what others may think about...
  5. V

    Husband is a possible carrier of c9 gene - anxiety over symptoms.

    Hi Everyone, My husband is 35 years old and has lost a cousin, an aunt, 2 uncles, (all to ALS) and currently watches his mom battle the final stages of ALS. His family carries the c9 gene. Upon visiting with his mom over Christmas (they live out of state) and spending a week surrounded by ALS...
  6. G

    Six Months - Many Symptoms - No Answers

    Hello, Like many others I have been visiting this message board after experiencing symptoms that led me to the internet - that led me here. I have read many posts and many stories on this site and have much respect for this wonderful forum. I will try not to make this a long and hard to read...
  7. T

    Ques. on Brainstorm (NurOwn Trial)

    Hello: I am a cALS for my husband. I have questions about the Brainstorm Cell Therapeutics (Trial of NurOwn for ALS): 1) What are the pros and cons of this trial? 2) It seems to have promising anecdotal info. -- why aren't more people doing it? 3) When will results be published? 4) When could...
  8. J

    Brainstorm Nurown 'Right to Try' participant shares progress

    As some of you may know, Brainstorm granted one PALS free access to NurOwn as a 'thank you' for the work he did on Right to Try. He is not in a trial but is being given the course separately. His update is on Facebook -- matt.bellinski.7 Mod note -- not linking directly due to fundraising...
  9. L

    Update from I feel so helpless

    Previous thread here. Good evening. Just got my second Emg. This one was done at a ALS specialist hospital accredited by the ALS Association. The Dr was extremely thorough and explained everything he did. It took about 2hours and he checked every where except my eyes! Conclusion was Mildly...
  10. R

    Thank you in advance

    I want to thank you all in advance, and let you know that I will not dispute your suggestion (and only welcome it) if you don't think ALS is a possibility in my case. I also want to let you know that my thoughts are with each of you that have been diagnosed or have had a family member diagnosed...