I admit to having gotten a bit lax on my wheelchair maintenance. My capacity to do things is limited and I have chosen to use that capacity doing other, more interesting things.
Unfortunately, I have had two recent wheelchair failures that are completely due to lack of maintenance. So, I am...
For those of you with Golden lift recliners, can I get my PALS into it with a hoyer?
I have been exclusively using a hoyer to transfer him for a while now. I'm pretty sure he could not stand on his own even with support, even just for a pivot transfer. (I'd be scared to death to even try.)...
About 3-4 years ago I came to this forum and asked the dreaded question "Do I have ALS". I had some fasciculations and cramping in my feet, balance issues, spasticity in both legs and slight speech changes. I was assured by members that my symptoms were NOT symptoms of ALS and I went merrily...
do i have als
symptoms of als
Yesterday we had our first ALS Clinic visit. I think my PALS was overwhelmed by all of the people. He says he is very tired.
He was diagnosed 3 1/2 years ago but was pretty much on a plateau until about 2 months ago when he seems to have fallen off a cliff. For the first 3 years his left...
My PALS and I have decided to use hospice when the time is right. He uses a Trilogy about 17 hours a day, does not want to be trached or have a PEG. He is able to eat whatever he wants (with the help of water to wash it down), he transfers from scooter to chair/commode but anything he does is...
I'm a bit lost - finally third neurologist confirmed I have ALS. I am using walker now - wondering if I should go ahead and purchase a used wheel chair on Craig's List. Also - in a great deal of pain at night - horrible cramps - given muscle relaxers - still little help. They tell me ALS is...
I had a few stretching exercises I was doing and can no longer do since I cannot sit in a chair any longer, or do the standing exercises for fear of falling. What do I now? Would a therapist help? ROM exercises?
How I hate that question now.
It's become almost a default greeting. I know most people are trying to be kind by asking, but I honestly don't know how to answer anymore. I usually just say "We're OK" or "We're hanging in there". But honestly, we're not OK. And I'm sometimes just hanging...
I'll try to keep this as succinct as possible. I have been experiencing a variety of symptoms for several months. Symptoms have included; shortness of breath, fatigue, tripping/falling and most recently atrophy and weakness in my left leg. I have been evaluated by a pulmonologist...