questions

  1. A

    Bedroom Design Questions

    I am fairly newly diagnosed. My home is a two floor home with bedrooms on the second floor. We installed a chair lift, but we are also planning to add a first floor bedroom and full bath to the house. I have some logistic questions for you all. When you are at the point that you have a...
  2. A

    Clothing Questions

    Hi. This may seem like a silly question, but I am curious what other people have done. I have limb onset ALS - my right foot is dropped and right leg is very weak. I have an ankle AFO. I can walk with walking sticks (sometimes uneasy). I just got a rollator. And I have a transport...
  3. H

    New to PEG - medications/ supplements questions

    Hi all - Hoping to gain some insight for my person living with ALS. Their tube will be placed very soon. Looking at this as a positive addition as swallowing is difficult, especially pills and liquids. Meeting with doctor soon about many of my below questions, but we are eager to have some...
  4. O

    Covid vaccination and low dose naltrexone questions

    My PC is an antivaxxer and recommends against getting any additional covid vaccinations. I've had the first three and plan to get a 4th this fall. Has anyone had adverse reactions to the covid vaccine, other than the usual slightly sore arm? My son and I both had covid a year ago; he is not...
  5. M

    BiPap questions

    My BiPap was delivered today. I want to breathe slower than the machine wants me to. Inhaling and exhaling get difficult toward the end. Can one get a longer hose? The space between my side of the bed and the wall is narrow-ish and this means that with the nightstand and then the BiPap, I...
  6. M

    PEG procedure questions

    I called to schedule my PEG today. They said they want to do the CT themselves (90 min drive each way). Then they want to have me open my mouth and say Aahh so they can see how open my airway is (or isn't), and based on what they see they will score me (mallampati), and that plus my "history"...
  7. A

    Hoping for a little reassurance

    Good evening, everyone, First off, I have been constantly amazed at the grace and promptness with which questions from anxious people here are answered, and in my time lurking over the last couple months these replies and stickied threads have been a huge resource. So thank you! I'm just...
    • AnxiousinVA
    • Thread
    • als atrophy back bed clinical cramping emg family family history grace holiday hope hyperreflexia leg pain neurologist questions running shoulder symptom symptoms twitch twitches twitching weakness worried
    • Replies: 3
    • Forum: Could this be ALS?
  8. J

    Please do not be too quick to say NO to possible ALS diagnosis

    About 3-4 years ago I came to this forum and asked the dreaded question "Do I have ALS". I had some fasciculations and cramping in my feet, balance issues, spasticity in both legs and slight speech changes. I was assured by members that my symptoms were NOT symptoms of ALS and I went merrily...
    • judy.king
    • Thread
    • als balance chair clinic cramping decline diagnosed diagnosis do i have als emg fasciculations foot foot drop medical mnd neurologist onset pls power questions speech symptoms symptoms of als tongue work
    • Replies: 5
    • Forum: Could this be ALS?
  9. Z

    Twitching+hyperreflexia

    Hi! Hi. I have been very concerned about my recent symptoms. 2months ago, my body jerked a lot and, they felt like they were over- sensitive. I ignored those symptoms. However, the next day, my legs began to twitch. It began with the place right above my both knees twitching uncontrollably and...
    • zmxn
    • Thread
    • hyperreflexia questions reading symptoms tongue twitch twitches twitching work
    • Replies: 0
    • Forum: Could this be ALS?
  10. Z

    Twitching+hyperreflexia

    Hi! Hi. I have been very concerned about my recent symptoms. 2months ago, my body jerked a lot and, they felt like they were over- sensitive. I ignored those symptoms. However, the next day, my legs began to twitch. It began with the place right above my both knees twitching uncontrollably and...
    • zmxn
    • Thread
    • hyperreflexia questions reading symptoms tongue twitch twitches twitching work
    • Replies: 12
    • Forum: Could this be ALS?
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