Egil S
New member
- Joined
- Jun 26, 2011
- Messages
- 3
- Reason
- Learn about ALS
- Country
- US
- State
- Minnesota
- City
- St Paul
Hi, I've been reading posts here for a week now. I've suspected syptoms as early as 6 years ago: my legs seem to be "dying", were flabby even though I bicycled every day. I had to buy a used C-PAP two years ago and am dependent on it to sleep. This winter I had a viral infection with lethargy and fatigue lasting months and a few episodes of motor paralysis. When I finally recovered from this I began to have greater weakness in my legs and back until the paralysis returned with greater intensity and on a daily basis. The paralysis occurs whenever I lay down to rest though rarely when I first wake up in the morning. I have to lay down frequently to rest. I have signs of hyper-reflexivity. My trunk muscles have become harder than any time I had tried to work-out in the past.
Cancer was "ruled out" but only with blood tests. My doctor didn't recognize the ALS symptoms. I suspect FTD (dementia) as well so she wanted me to see a psychiatrist. I begged for neurological referral which was granted. I did not speak of ALS. I wasn't confident enough then and I was very lethargic. I'm seeing a different doctor tomorrow. I will try to get a referral to the local ALS clinic instead of wasting time with the first referral.
I'm not afraid. I guess it helps that I've worked with PALS as a Respiratory HHA. The ordeals they went through were past, I did not know of these struggles. If I choose to vent, I can choose between several vent-houses here with staff I've known and worked with.
Cancer was "ruled out" but only with blood tests. My doctor didn't recognize the ALS symptoms. I suspect FTD (dementia) as well so she wanted me to see a psychiatrist. I begged for neurological referral which was granted. I did not speak of ALS. I wasn't confident enough then and I was very lethargic. I'm seeing a different doctor tomorrow. I will try to get a referral to the local ALS clinic instead of wasting time with the first referral.
I'm not afraid. I guess it helps that I've worked with PALS as a Respiratory HHA. The ordeals they went through were past, I did not know of these struggles. If I choose to vent, I can choose between several vent-houses here with staff I've known and worked with.