Hello everyone, my name is Greg. My heart goes out to everyone who has been afflicted with this disease and my thoughts and prayers are with all of you. Also, I want to thank everyone for giving g your time and efforts on posts such as ‘Do I Have Als’ your time and effort is greatly...
shortness of breath
I’ve been lurking for a while but have been hesitant to post because I don’t want to upset anyone by jumping the gun.
I’ll try and make this short but I just need some insight into what I’m experiencing. It started with twitching that I noticed going on two months ago. The twitches...
I apologize in advance for the length of this post. I’ve only been a registered user for less than 24 hours but am really impressed with the empathy and knowledge of posters and moderators. What a fantastic resource. I am on this site to not only utilize the nuts and bolts of...
Good evening. After reading the stickies, I am still left with some questions. Here’s where I am at—
1. I have had body-wide twitching for about 6 weeks. It seems to be mostly in my legs now, with some in my face , back, and arms (not often). The twitching occurs on both sides. Some days...
Chally’s spirit left his body as he slept in the early morning hours of Wednesday April 3rd. He continued to live his life to the fullest despite ALS wrecking his body bit by bit.
This forum and all of you were so important to him. He talked about this community of friends every day.
My husband is 35 years old and has lost a cousin, an aunt, 2 uncles, (all to ALS) and currently watches his mom battle the final stages of ALS. His family carries the c9 gene.
Upon visiting with his mom over Christmas (they live out of state) and spending a week surrounded by ALS...
c9 gene anxiety
Just something to read… in the “After 5 Forum Pub”. It took me a few
days to put this together. My writing skills aren’t what they used to be.
After Spring Break and for the rest of the year our beach bar often reminded
me of a Chameleon. It was a side gig I got involved with.
Well, damn. My local neurologist, after two months of elimination tests, has now indicated likely NMD, with ALS being the most likely candidate.
He basically kicked the can down the road and referred me to Dr. Pulley at Jacksonville Shands. We see him in late April for a second EMG and opinion...
Today I had my remaining crown replaced with a temporary. In two weeks I'll go back for the permanent.
The last thing I wanted to happen was for a cracked crown to break off when I'm not as mobile as now so I had it done.
They had all the info in my chart and there was a new dentist only 28...
Hello I have read all the things I should before posting so please just hear me out as I have done a lot of research. First of all let me just say I am proud of everyone in here who has dealt with this horrible disease, now I know twitching isn’t a sign of als but can come along with it. My main...