ALS, as we know, does not start with diagnosis. I get frustrated when asked the date of PALS diagnosis.
Studies have shown a presymptomatic stage of ALS. And, those fleeting pre-symptoms are the real beginnings. Many PALS can identify the symptoms that caused them to seek medical advice. For...
These days, they all blend together, so I am acting like it's Tunesday... And happy hour has arrived. What good are some cold beers without some good music? Attached is a link to a song by Jason Becker. I believe I've mentioned him before, but this song just came on my Spotify playlist, so I...
I was diagnosed in March 2022 and am relatively slow progressing. However, I can no longer ride a regular bike as I am scared I will fall off and my muscles are too weak. So I am riding as many of the Great Rides of New Zealand as I can on my electric three-wheeler with pedals and raising...
Hello everyone, my name is Greg. My heart goes out to everyone who has been afflicted with this disease and my thoughts and prayers are with all of you. Also, I want to thank everyone for giving g your time and efforts on posts such as ‘Do I Have Als’ your time and effort is greatly...
shortness of breath
I’ve been lurking for a while but have been hesitant to post because I don’t want to upset anyone by jumping the gun.
I’ll try and make this short but I just need some insight into what I’m experiencing. It started with twitching that I noticed going on two months ago. The twitches...
I apologize in advance for the length of this post. I’ve only been a registered user for less than 24 hours but am really impressed with the empathy and knowledge of posters and moderators. What a fantastic resource. I am on this site to not only utilize the nuts and bolts of...
Good evening. After reading the stickies, I am still left with some questions. Here’s where I am at—
1. I have had body-wide twitching for about 6 weeks. It seems to be mostly in my legs now, with some in my face , back, and arms (not often). The twitching occurs on both sides. Some days...
Chally’s spirit left his body as he slept in the early morning hours of Wednesday April 3rd. He continued to live his life to the fullest despite ALS wrecking his body bit by bit.
This forum and all of you were so important to him. He talked about this community of friends every day.
My husband is 35 years old and has lost a cousin, an aunt, 2 uncles, (all to ALS) and currently watches his mom battle the final stages of ALS. His family carries the c9 gene.
Upon visiting with his mom over Christmas (they live out of state) and spending a week surrounded by ALS...
Just something to read… in the “After 5 Forum Pub”. It took me a few
days to put this together. My writing skills aren’t what they used to be.
After Spring Break and for the rest of the year our beach bar often reminded
me of a Chameleon. It was a side gig I got involved with.