early

  1. J

    Early breathing difficulties

    Hi. I 67M here diagnosed last August. Still mobile, but left arm and hand most impacted where my onset was. March 18th I woke up with breathing issues. Got appointment with RT and my sitting FVC remained 66% but supine had falled to 55%. Now I am on a ventilator 9 hours a night with an hour or...
  2. lgelb

    Small, early ropinirole trial

    Full report here.
  3. Tomswife

    The Importance of Early Diagnosis and Treatment

    ALS, as we know, does not start with diagnosis. I get frustrated when asked the date of PALS diagnosis. Studies have shown a presymptomatic stage of ALS. And, those fleeting pre-symptoms are the real beginnings. Many PALS can identify the symptoms that caused them to seek medical advice. For...
  4. richdees23

    Two days late and a couple hours short...

    These days, they all blend together, so I am acting like it's Tunesday... And happy hour has arrived. What good are some cold beers without some good music? Attached is a link to a song by Jason Becker. I believe I've mentioned him before, but this song just came on my Spotify playlist, so I...
  5. G

    Riding South Island NZ on a three-wheeler in early stages MND

    I was diagnosed in March 2022 and am relatively slow progressing. However, I can no longer ride a regular bike as I am scared I will fall off and my muscles are too weak. So I am riding as many of the Great Rides of New Zealand as I can on my electric three-wheeler with pedals and raising...
  6. G

    My symptoms

    Hello everyone, my name is Greg. My heart goes out to everyone who has been afflicted with this disease and my thoughts and prayers are with all of you. Also, I want to thank everyone for giving g your time and efforts on posts such as ‘Do I Have Als’ your time and effort is greatly...
    • Gb84
    • Thread
    • arm back balance brain breathing cramping early family fingers heart mri muscle neurologist pain scared shortness of breath slurred speech speech support symptom symptoms tests twitches twitching weakness
    • Replies: 11
    • Forum: Could this be ALS?
  7. K

    ALS symptoms?

    Hi all, I’ve been lurking for a while but have been hesitant to post because I don’t want to upset anyone by jumping the gun. I’ll try and make this short but I just need some insight into what I’m experiencing. It started with twitching that I noticed going on two months ago. The twitches...
    • KristiRinTX
    • Thread
    • als als symptoms back burning clinical early emg fatigue fear mri muscle neurologist night questions second opinion shoulder symptoms symptoms? tests twitches twitching vitamin d voice weakness worried
    • Replies: 3
    • Forum: Could this be ALS?
  8. T

    Sinking - got a lifeline?

    Hi everyone. I apologize in advance for the length of this post. I’ve only been a registered user for less than 24 hours but am really impressed with the empathy and knowledge of posters and moderators. What a fantastic resource. I am on this site to not only utilize the nuts and bolts of...
    • Thomas3857
    • Thread
    • als atrophy back bed brain children cramping diagnosed driving early emg fasciculations father fatigue foot helpful hope hours medical muscle muscle fatigue neurologist reading symptoms tests
    • Replies: 57
    • Forum: Could this be ALS?
  9. N

    Could this be ALS?

    Good evening. After reading the stickies, I am still left with some questions. Here’s where I am at— 1. I have had body-wide twitching for about 6 weeks. It seems to be mostly in my legs now, with some in my face , back, and arms (not often). The twitching occurs on both sides. Some days...
    • NeedinPeace
    • Thread
    • ability als als? atrophy back brain clinical early emg family fear fingers ice mri neurologist night questions shaking symptom testing twitching voice wanted weakness worried
    • Replies: 0
    • Forum: Could this be ALS?
  10. chally

    Chally Erb flies free

    Chally’s spirit left his body as he slept in the early morning hours of Wednesday April 3rd. He continued to live his life to the fullest despite ALS wrecking his body bit by bit. This forum and all of you were so important to him. He talked about this community of friends every day. He was...
    • chally
    • Thread
    • als early free grace hours life
    • Replies: 37
    • Forum: In memory of
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