1. Nuts


    Matt has been gone four months, and it feels like a lifetime. On the other hand, I think I'm just now mourning what we went through. All the losses that I was unable to mourn because we were too busy trying to live--I think they are battling their way out of the box I locked them in at the time...
  2. B

    2 emg's, still not convinced

    Keeping it short, I have three questions. 1. I’ve had two emg’s done by two different neurologists. I didn’t think the first one was done correctly and I’m worried the second one wasn’t either. The second neurologist did the emg at my request because of my ALS worries and also to test the...
  3. A

    Probable ALS - no diagnosis

    First off, I want to thank you all so much for the invaluable wisdom so many of you have shared here. You have helped so many (including me) through this disorienting process, and I really can’t thank you enough. This is my first time posting, and I feel like I have nowhere else to turn. My...
  4. L


    My PALS aspirated his yogurt a few days ago. This is our first trip to the ER because of this. They are doing breathing treatments and suction every four hours. Doing IV antibiotics. SATS staying around 90 until last night when he wouldn’t use his bipap and he was in the 80’s. My daughter came...
  5. KimT


    In February I noticed my right knee started to hurt after exercising in pool. Just sitting on a noodle and peddling it like a bicycle (same as I had been doing for last year). I also continued walking on a treadmill for 10 minutes (1/2 mile) each morning, sometimes on a slight incline to get...
  6. A

    Question about fALS inheritance?

    I'm hoping this is the right forum I'm very sorry if not. My dad was diagnosed with bulbar ALS in April 2015 at 51, and sadly only made it to February 2016. I never really worried that it could be familial, but last night I was up all night thinking about it. He was an extremely heavy drinker...
  7. H

    please help

    first of all thank you all for allowing us to ask you questions about a serious disease that has affected you. very appreciated my questions, and i am very concerned: a very close person, whose mother has been diagnosed with frontotemporal dementia (at age 71,) is suffering from acute onset of...
  8. S

    Facial weakness and continuing bulbar symptoms post EMG

    Hello, I'm a 43 year old male that started twitching in 1999. I saw a couple of Neuros back then and had an EMG that was clean. Diagnosis was simply benign fasiculations. Fast forward to late 2013, my voice started to have this weird vibration/rattle at the end of a sentence that occurred...
  9. Q

    Frontotemporal Dementia (FTD)

    I been reading a lot of ftd, I was hoping that someone can share personal experience of ftd, the early signs and the later stage with ftd.
  10. J

    20 years old male with symptoms indicating some MND.

    Hi, First of all I am very sorry that you are experiencing or having contact with this terrible disease. I would be very grateful for any help and advice concering my symptoms. I will try to post all of my symptoms and worries down below as clearly as possible but I warn you it will be a long...