JacobS157
New member
- Joined
- Mar 13, 2018
- Messages
- 4
- Reason
- Other
- Country
- PL
- State
- zachodniopomorskie
- City
- Szczecin
Hi,
First of all I am very sorry that you are experiencing or having contact with this terrible disease. I would be very grateful for any help and advice concering my symptoms. I will try to post all of my symptoms and worries down below as clearly as possible but I warn you it will be a long post. If there are any grammar mistakes or unclear sentences I am sorry. English is not my native language.
I am 20 years old male from Poland with no family history of ALS and frankly any other neurological disorders. It all started last year in October when I was getting a lot of sensory symptoms like tingling or numbness and sensation of muscle burning throughout my body. My muscles were also getting tired faster than before. I also had a lot of body tremor- my hands,legs and abdomen were shaking preety badly( and I still have this but not as severely). Then I went to the neurologist and he said that the tremor was due to stress and sensory symtoms due to vitamin B12 or D deficiency and he was probably right, because after taking vitamin B12 I don't have them anymore. But in the meantime I googled my symptoms and I saw that I might have MS or ALS and that's how the real hell started:sad:
One month after my first neurologist appointment I started having fasciculations. Firstly in my calfs then after about two weeks throughout my whole body. That's how I started to be really anxious about ALS. I went to another neurologist and he did basic neurological exam. He said that I have bilateral brisk reflexes but he wasn't concerned at all. No Babinsky, Hoffman, clinical weakness etc. He said that it is probably bfs.
I did EMG one and half month ago on my right thigh, hand and arm and there was found one fibrilation in my arm :shock: but the neurologist was not concerned at all and he said that it is bfs. I read that you can't have bfs diagnosis without clean EMG. Now I am really clueless, because since then I have myriad of other symptoms:
-perceived slurring only noticed by me but still real. I am not speaking as fluently as I used to. I am stumbling over my words, mispronouncing certain words, talking slower, having whistling pronounciation of S letter.Overall talking takes more effort. And I was always very proud of my verbal skills but now I have no urge to talk at all.
-occassionally mild shortness of breath- I have to take deep breaths.
-fast muscle tiredness for example when I am driving my left arm feels tired after few minutes of holding the driving wheel.
-a lot of sensory symtoms like: feeling of vibration under my skin ( some ALS patients have this symptom), feeling of warmth in my left foot, quick stabbing pain throughout my body.
-one of the most concernig symptoms is my left leg. It is a lot weaker than my right leg, it is getting tired a lot faster, after exercising it hurts more and while walking it feels off like it is heavier and less able than my right foot.
-my neck hurts while twisting it to the right side.
-after talking constantly longer than a minute my throat starts to be tired and hurts.
-my pinky in my right hand is tremoring while typing.
-body tremor even after mild physical exertion,
-facial muscle tremor while smiling or closing one eyelid especially when I am nervous.
-sometimes hearing hypersensitivity- certain sounds are irritating to my hearing.
-emotinal liability- sometimes I am happy and sometimes I have attacks of depression and I want to cry.
- fast muscle tiredness, disproportional to the effort.
-lack of hunger.
-sleep deprivation- I sleep less than usually.
-sometimes silent cracking or crushing sound of joint in my left leg.
-also a very worring symptom- brainfog, I tend to forget what I want to do for a few seconds, sometimes I say the wrong words that I didn't mean, conversetion requires more effort, lack of concentration, lack of motivation - is it a dementia, mild depression or neurosis ?
-bodywide fasciculations for 4 months
Tests that I have done:
-MRI- negative- so no MS or brain cancer.
EMG- one fibrilation found- no BFS ?
-Blood test for Lyme - negative- so probably no Lyme disease.
-Blood test for thyroid diseases and Hashimoto disease- negative.
-Test for Miastenia Gravis- negative.
-Also I am taking VItamin D, B6 and Magnesium but it doesn't help.
Questions:
-can I have BFS with one fibrilation found on EMG and can this fibrilation be the begging of ALS ?
-Can I have demantia in my young age or is this mild depression, anxiety or neurosis ?
-are bilateral brisk reflexes with one fibrilation on EMG and bodywide fasciculations with my slight pronounciation issues and weird left leg feeling and slight weakness indicator of ALS disease ?
-how long does it take from initial symptoms to the ALS diagnosis ? because I have my symptoms for only five months and I read that some people had them for years and still had diagnosis of ALS- especially younger people.
I think that's all that I have to say for now. What do you think about my symptoms? I am sorry that this post is that long and I hope that you didn't fall asleep halfway through my post. I appreciate your help !
First of all I am very sorry that you are experiencing or having contact with this terrible disease. I would be very grateful for any help and advice concering my symptoms. I will try to post all of my symptoms and worries down below as clearly as possible but I warn you it will be a long post. If there are any grammar mistakes or unclear sentences I am sorry. English is not my native language.
I am 20 years old male from Poland with no family history of ALS and frankly any other neurological disorders. It all started last year in October when I was getting a lot of sensory symptoms like tingling or numbness and sensation of muscle burning throughout my body. My muscles were also getting tired faster than before. I also had a lot of body tremor- my hands,legs and abdomen were shaking preety badly( and I still have this but not as severely). Then I went to the neurologist and he said that the tremor was due to stress and sensory symtoms due to vitamin B12 or D deficiency and he was probably right, because after taking vitamin B12 I don't have them anymore. But in the meantime I googled my symptoms and I saw that I might have MS or ALS and that's how the real hell started:sad:
One month after my first neurologist appointment I started having fasciculations. Firstly in my calfs then after about two weeks throughout my whole body. That's how I started to be really anxious about ALS. I went to another neurologist and he did basic neurological exam. He said that I have bilateral brisk reflexes but he wasn't concerned at all. No Babinsky, Hoffman, clinical weakness etc. He said that it is probably bfs.
I did EMG one and half month ago on my right thigh, hand and arm and there was found one fibrilation in my arm :shock: but the neurologist was not concerned at all and he said that it is bfs. I read that you can't have bfs diagnosis without clean EMG. Now I am really clueless, because since then I have myriad of other symptoms:
-perceived slurring only noticed by me but still real. I am not speaking as fluently as I used to. I am stumbling over my words, mispronouncing certain words, talking slower, having whistling pronounciation of S letter.Overall talking takes more effort. And I was always very proud of my verbal skills but now I have no urge to talk at all.
-occassionally mild shortness of breath- I have to take deep breaths.
-fast muscle tiredness for example when I am driving my left arm feels tired after few minutes of holding the driving wheel.
-a lot of sensory symtoms like: feeling of vibration under my skin ( some ALS patients have this symptom), feeling of warmth in my left foot, quick stabbing pain throughout my body.
-one of the most concernig symptoms is my left leg. It is a lot weaker than my right leg, it is getting tired a lot faster, after exercising it hurts more and while walking it feels off like it is heavier and less able than my right foot.
-my neck hurts while twisting it to the right side.
-after talking constantly longer than a minute my throat starts to be tired and hurts.
-my pinky in my right hand is tremoring while typing.
-body tremor even after mild physical exertion,
-facial muscle tremor while smiling or closing one eyelid especially when I am nervous.
-sometimes hearing hypersensitivity- certain sounds are irritating to my hearing.
-emotinal liability- sometimes I am happy and sometimes I have attacks of depression and I want to cry.
- fast muscle tiredness, disproportional to the effort.
-lack of hunger.
-sleep deprivation- I sleep less than usually.
-sometimes silent cracking or crushing sound of joint in my left leg.
-also a very worring symptom- brainfog, I tend to forget what I want to do for a few seconds, sometimes I say the wrong words that I didn't mean, conversetion requires more effort, lack of concentration, lack of motivation - is it a dementia, mild depression or neurosis ?
-bodywide fasciculations for 4 months
Tests that I have done:
-MRI- negative- so no MS or brain cancer.
EMG- one fibrilation found- no BFS ?
-Blood test for Lyme - negative- so probably no Lyme disease.
-Blood test for thyroid diseases and Hashimoto disease- negative.
-Test for Miastenia Gravis- negative.
-Also I am taking VItamin D, B6 and Magnesium but it doesn't help.
Questions:
-can I have BFS with one fibrilation found on EMG and can this fibrilation be the begging of ALS ?
-Can I have demantia in my young age or is this mild depression, anxiety or neurosis ?
-are bilateral brisk reflexes with one fibrilation on EMG and bodywide fasciculations with my slight pronounciation issues and weird left leg feeling and slight weakness indicator of ALS disease ?
-how long does it take from initial symptoms to the ALS diagnosis ? because I have my symptoms for only five months and I read that some people had them for years and still had diagnosis of ALS- especially younger people.
I think that's all that I have to say for now. What do you think about my symptoms? I am sorry that this post is that long and I hope that you didn't fall asleep halfway through my post. I appreciate your help !