dementia

  1. R

    Worried I might have ALS

    So, Ive been worried about the possibility that I have ALS. Increasingly extensive research has only reinforced this in my mind. Im 24 and I've been experiencing fasiculations for about 4 months. They arent localized and have been all over with varying intensity (oftentimes the ones in my neck...
  2. A

    Parkinson's and FALS?

    Hello, I wanted to know about the value of getting genetic testing for my mother, who is 79 and in the final stages of ALS, and for me, a 40 year old father of 2. My maternal grandmother was diagnosed with Parkinson's in Asia at the age of 58. This was in the 1970's. she developed dementia...
  3. S

    needing advice

    Advice please - My husband doesn't have a peg and doesn't want one. He didn't do a lot of research on what to expect when diagnosed with als but knew he didn't want many interventions. He did agree to the trilogy when it came time to have it and is pretty compliant about most things. He's...
  4. S

    Frontal temporal lobe dementia in ALS?

    I am just curious if this sounds like FTD? I heard ALS causes FTD. My symptoms are that I tongue tie words more frequently, like Rear Wheel drive comes out like Real Wheer and then I have to correct it. Also like elbow joint came out like elboy joint today. Stuff like that, just more frequently...
  5. H

    Company keeps Alzheimer's and ALS treatment secret

    Alzheimer's research scandal? Researchers from Swedish Karolinska institution may have found an all new pharmaceutical treatment for Alzheimer's disease, but the drug company Apodemus have been keeping results secret. An Alzheimer's treatment is worth billions, and researchers are threatened...
  6. N

    Is he going to choke to death?

    So today my sister had a 'conversation' with my (non-speaking bulbar onset) father, and he finally said it explicitly. He doesn't want a feeding tube, and that's that. He chokes on food almost daily even though he of course tries to be super careful while he eats and eating takes most of his...
  7. D

    MND Diagnosis is getting us mad!! pls help

    Hi guys. I am from India and this is regarding diagnosis of my father. He is now 63 years old. It all started about 1 year back when he started complaining about trouble in grasping small objects/ starting car with keys and holding spoons. EMG/NCS confirmed there is a motor nerve problem in...
  8. T

    Should I see a doctor, or a counselor?

    Looking for general advice. Here is my history: My maternal grandmother had dementia/Alzheimer's (that's all I really know) and died in her 80s. My mother had ALS. Onset was in her mid to late 40s and she died at 55 in February this year. She only has one brother (67, living) with no history...
  9. K

    Synesthesia

    Early this morning I had a really intense synesthesia experience. Years ago I would get these when hearing or playing music, I would see colors and textures.. somewhat muted unless I was very relaxed. This morning the colors were vibrant and intense and very glossy. Lots of blues, greens and...
  10. H

    Weight loss in ALS

    I recently visited my sister, who has had ALS since last December, and I was shocked at the progression over the two-month period since I last saw her. She can no longer walk or talk, her hands are clawed, and her dementia seems to be advancing, but her weight loss seemed especially alarming...
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