dementia

  1. S

    Fear of ALS due to widespread symptoms, I need your view in this.

    Hi everyone Yes, I have read the stickies and I appreciate them! But, I would like to explain my situation and get your views on it. So, my fear is ALS. I am a 30 year old male, I have aways been healthy expect for some allergy. Also, my mother tongue is Swedish so I hope my English is not...
  2. C

    Concerned - advice would be appreciated

    Hello, I come from an ALS family. My mother passed away due to ALS, so did my Aunt, and my Uncle passed away from frontotemporal dementia. I have never been tested but I would wager we are a C9ORF72 family. I have had a fasciculation in my right foot since about age 14. I am 22 now. It...
  3. T

    Could it Really Be?

    First off, my story... I’m a white, 29 year old male, and in the middle of December I started developing headaches. The headache was so intense I had to go to the ER at UAB in Birmingham, AL. They found a “small” vascular benign lesion in my left frontal lobe. The neuros sent me home and just...
  4. T

    Familial ALS?

    Hi all, Thank you so much for taking time to read and respond. I️ really appreciate it and all this forum does. I have a question about familial als. My mother in law passed away from als at 57 after a 6 year battle with bulbar als. At the time it was determined that hers was sporadic. For...
  5. K

    Worried about my children

    Good afternoon, My father was diagnosed with ALS on October 6, 2017. The critical care neurologist said he was about 16-18 month into the progression of the disease and gave him about 8 months. In retrospect, we feel that he was probably more like 2-3 years into the disease. He passed away...
  6. O

    Genetic Testing

    I've asked this question before but want to see if anyone has new information. When I was going through the diagnostic process, the neuro I was seeing suggested genetic testing through the Athena Lab in the Boston area. (Think this lab has a new name now) The cost was about $35,000, so it was...
  7. T

    Need advice!

    On March 28 a little more than four months ago i started experiencing fatigue in my neck. I also noticed that solid and dry food seemed to get stuck in my throat after i swallowed and was very uncomfortable. As time went on i noticed i would wake up with my limbs feeling very weak, but it would...
  8. N

    Inherited ALS

    My paternal Grandmother died from ALS when she was about 59. Her son was also diagnosed with ALS in his seventies but died from a stroke. My dad died at 83 with some form of dementia. My brother died last year from ALS at 60. As far as I know there has not been any genetic testing because of the...
  9. BlsdMama

    FTD and ALS and insurance?

    So no one ever asked me if I had any family members with dementia. ALS, yes, but dementia no. ALS Clinic was yesterday. I had run across an article about frontotemporal dementia and ALS. I asked if there was a link. The neuro was concerned. My grandmother died from FTD a few years ago...
  10. BlsdMama

    Dx'd PLS - headed into Clinic

    So, next week is my first appointment in the ALS Clinic. Any idea what to expect/see? I don't think this is headed anywhere good. My last EMG came back with no denervation but I definitely have a muscle in my right calf that is flaccid. It is 1.5" smaller than the left side. My...
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