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  1. J

    Please do not be too quick to say NO to possible ALS diagnosis

    About 3-4 years ago I came to this forum and asked the dreaded question "Do I have ALS". I had some fasciculations and cramping in my feet, balance issues, spasticity in both legs and slight speech changes. I was assured by members that my symptoms were NOT symptoms of ALS and I went merrily...
  2. C

    Tongue fasciculations that I can see but can’t feel.

    Hello everyone, and thank you for your time to read this and respond. I will be making a donation when I get paid. I’m 28 years old and have had twitches for 3 months. And yes I read the thread that if I have twitches read this first. The problem is that I have terrible health insurance and...
  3. Z

    Twitching+hyperreflexia

    Hi! Hi. I have been very concerned about my recent symptoms. 2months ago, my body jerked a lot and, they felt like they were over- sensitive. I ignored those symptoms. However, the next day, my legs began to twitch. It began with the place right above my both knees twitching uncontrollably and...
  4. Z

    Twitching+hyperreflexia

    Hi! Hi. I have been very concerned about my recent symptoms. 2months ago, my body jerked a lot and, they felt like they were over- sensitive. I ignored those symptoms. However, the next day, my legs began to twitch. It began with the place right above my both knees twitching uncontrollably and...
  5. B

    over 6 months of symptoms no answer

    First i would like to thank everyone in this forum for providing there experiance and knowledge, and i hope for a cure soon. would also like to state that i have never had HA and my symptoms did not start with twitching. I won't make this a novel so here goes. Sept. Mild fatigue and felt i...
  6. I

    Very Fast Progression

    I was originally diagnosed with progressive bulbar palsy in January of 2018. At that time we were told that there was an excellent possibility of having several years before things really became troublesome. In April 2018 I had a PEG put in and speaking was no longer a possibility. My legs...
  7. F

    Could this be ALS?

    I will try to make this brief. Symptoms: *. Muscle twitching: started out in a few places about a month ago. Then increased all over. Now has decreased but in more specific spots (calves, thighs, abdomen, shoulder area). It seems almost as if the twitching is moving from lower body to...
  8. swalker

    Lithium Battery for Magic Mobility X4

    I am not sure where to put this, so will put it here. Mods, please feel free to move this to a more appropriate forum. As some of you probably read in the PALS checkin post, last Sunday we installed a home-built lithium battery pack in my Magic Mobility X4. I will provide some details in this...
  9. W

    Does this sound like ALS?

    I apologize if I accidentally posted this twice. I tried posting earlier but I’m afraid I did something wrong and lost the post because I can’t find it. I’ll try to re-type my sentiments from my earlier post... I went to visit my PCP regarding muscle twitching. I have had twitching for about...
  10. K

    Club membership at hand

    Well, damn. My local neurologist, after two months of elimination tests, has now indicated likely NMD, with ALS being the most likely candidate. He basically kicked the can down the road and referred me to Dr. Pulley at Jacksonville Shands. We see him in late April for a second EMG and opinion...
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