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  1. J

    Please do not be too quick to say NO to possible ALS diagnosis

    About 3-4 years ago I came to this forum and asked the dreaded question "Do I have ALS". I had some fasciculations and cramping in my feet, balance issues, spasticity in both legs and slight speech changes. I was assured by members that my symptoms were NOT symptoms of ALS and I went merrily...
  2. C

    Tongue fasciculations that I can see but can’t feel.

    Hello everyone, and thank you for your time to read this and respond. I will be making a donation when I get paid. I’m 28 years old and have had twitches for 3 months. And yes I read the thread that if I have twitches read this first. The problem is that I have terrible health insurance and...
  3. Z

    Twitching+hyperreflexia

    Hi! Hi. I have been very concerned about my recent symptoms. 2months ago, my body jerked a lot and, they felt like they were over- sensitive. I ignored those symptoms. However, the next day, my legs began to twitch. It began with the place right above my both knees twitching uncontrollably and...
  4. B

    over 6 months of symptoms no answer

    First i would like to thank everyone in this forum for providing there experiance and knowledge, and i hope for a cure soon. would also like to state that i have never had HA and my symptoms did not start with twitching. I won't make this a novel so here goes. Sept. Mild fatigue and felt i...
  5. I

    Very Fast Progression

    I was originally diagnosed with progressive bulbar palsy in January of 2018. At that time we were told that there was an excellent possibility of having several years before things really became troublesome. In April 2018 I had a PEG put in and speaking was no longer a possibility. My legs...
  6. swalker

    Lithium Battery for Magic Mobility X4

    I am not sure where to put this, so will put it here. Mods, please feel free to move this to a more appropriate forum. As some of you probably read in the PALS checkin post, last Sunday we installed a home-built lithium battery pack in my Magic Mobility X4. I will provide some details in this...
  7. K

    Club membership at hand

    Well, damn. My local neurologist, after two months of elimination tests, has now indicated likely NMD, with ALS being the most likely candidate. He basically kicked the can down the road and referred me to Dr. Pulley at Jacksonville Shands. We see him in late April for a second EMG and opinion...
  8. W

    Should I be worried?

    Hello and thanks in advance for reading this and giving me some direction. I went to my PCP due to muscle twitching. At first, it was all over twitching. Now it seems more centralized, as in the sides of both calves, the back of my thighs, top and bottom of my foot. There are times I will...
  9. Clearwater AL

    A little Heinie...

    One afternoon this guy walks into a small tavern. He sits at the bar and says to the barmaid, “I’ll have a Jack on the Rocks.” She says, “This is a beer and wine tavern, we don’t have alcohol.” A little perturbed he says… “Dam, I thought this was a real bar, I need something to drink, then...
  10. KimT

    Dentist

    Today I had my remaining crown replaced with a temporary. In two weeks I'll go back for the permanent. The last thing I wanted to happen was for a cracked crown to break off when I'm not as mobile as now so I had it done. They had all the info in my chart and there was a new dentist only 28...
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