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dying

  1. M

    Rushed ALS Diagnosis ??

    First off, my heart goes out to all of you. You are so incredibly brave and generous with sharing your time, experience and support. My husband walked into a neurologist's office with symmetrical muscle weakness and walked out with a diagnosis of ALS. Some background - My husband is 51 and...
  2. S

    Question

    Hi, I know I have been here before but I just have a quick question and I don’t want to google.... I have body wide fasics- for over a year, no weakness but feel like I have mouth throat pnd drip issues, constant phlegm. My question- when someone has bulber, and they have bodywide...
  3. S

    Advice appreciated

    Good morning and thank you for accepting me to post on this board. I did not ever think I would be making a post like this. I have read through the stickies and the previous posts regarding twitching and symptoms. I still had a few questions, if you don't mind. I have been to my PCP and...
  4. S

    Eighteen, concerned that I may have ALS/MND.

    First, let me start by saying that I am here due to symptoms that have been concerning me for almost month. They are new symptoms that have arisen from other symptoms that have been occurring for over three months now, starting at the end of November. It all started when I had two bowls of...
  5. JimInVA

    Shifting Sands...

    Our journey began at a Joe Bonamassa concert in November of 2012. With no advance warning, Darcey was suddenly having difficulty walking. Later that same night, she'd be unable to rise from a seated position. It was the beginning of a life phase that neither of us anticipated. For all of...
  6. L

    The Ferrari

    A hip young man goes out and buys the best car available; a brand new Ferrari 550. It is also the most expensive car in the world, and it cost him $500,000. He takes it out for a spin and stops for a red light. An old man pulls up next to him on a moped. The old man looks over at the...
  7. Kristina1

    update on me

    I haven't posted in a while so I wanted to update. One of the main reasons I haven't been on here is... I'm writing a book! Or trying to. It has nothing to do with ALS or anything autobiographical. It's a scifi/fantasy romance. I've long been an avid fantasy reader, and always had stories of...
  8. A

    Healthy Anxiety - Thank You

    Hello, I have been on this forum for some time now, but I recently just joined. I know I suffer from health anxiety, a panic disorder, and long before everything else general anxiety. I recently lost 3 loved ones this year, but death isn't new to me. One of my uncles died of complications in his...
  9. M

    New consultation on als

    Hi..my neurologist is sending me to a als specialist..have had tongue atrophy and slurred speech for over a year..also have hyperreflexia and neuropathy in left foot..some stiffness in left calf..I'm scared..I don't feel like I'm dying?? Otherwise I am healthy...I'm just confused and weepy..any...
  10. J

    Cryopreservation

    desperate, just like everyone on this forum, i'm trying, trying... bureaucracy, science, time... everything is against us. what knocked me down is one scientist's sentence: "it is terrible to see patients dying faster then mice". time is crucial thing. my body is a weaker on a daily basis. so...
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