TomR1972
Active member
- Joined
- Mar 25, 2007
- Messages
- 55
- Reason
- PALS
- Country
- US
- State
- Ca
- City
- San Jose
I need some further input on als symptoms. My situation started out with a rather quick onset of extreme fatigue that affected legs and arms. My legs felt like rubber a sensation that wax and waned but was not completely gone. I had a bad headache, problems focusing and did not have the energy to want to move much.
Over the next 2 months I have had muscles that tire frequently but nothing close to that 3 week period of extreme fatigue which had me in bed almost all of the time outside of work. I now experience dull aching pain in hands and feet here and there, my right leg gets a gnawing dull pain from butt down the side of my leg. I have had shoulder pain, neck pain that comes and goes. I have had days where eating chocolate tires my jaws but others days with not a problem.
I have been tested for I think everything under the sun. I have bad days and better days but the extreme fatigue/weakness I had is better by about 80% but not gone. I lost roughly 12 pounds in those 2-3 weeks, changed my diet to bad food and have gained it all back and a few. However I can't help but feel that I've lost muscle. The only location on me that could possibly show atrophy is on the inside of my elbow it looks slightly indented. I have noticed that outside of my fattened belly region, my shirts fit looser.
I do have fasciculations which are far more prominant on days I don't feel as well. I have gotten more jerks but not many of a finger or an arm. I and my fiancee have felt buzzing vibrating like motions at times. A week ago I moved a lot of items which made my right arm shake when holding a piece of paper. I do get
The few things that make me feel that it may not be als are the aches and pains I feel. Also those 3 weeks had me feeling as if my life was over, I was that weak/tired/fatigue for no reason whatsoever. Yet I have felt much much better and as have mentioned feel at best 80 to 90% of myself. These situations make me feel as if it may be something else but of course I am trying to hold onto any hope.
I know everyone presents differently and I may be one of them but was hoping to get some input that might help me. Please let me know if you think
Over the next 2 months I have had muscles that tire frequently but nothing close to that 3 week period of extreme fatigue which had me in bed almost all of the time outside of work. I now experience dull aching pain in hands and feet here and there, my right leg gets a gnawing dull pain from butt down the side of my leg. I have had shoulder pain, neck pain that comes and goes. I have had days where eating chocolate tires my jaws but others days with not a problem.
I have been tested for I think everything under the sun. I have bad days and better days but the extreme fatigue/weakness I had is better by about 80% but not gone. I lost roughly 12 pounds in those 2-3 weeks, changed my diet to bad food and have gained it all back and a few. However I can't help but feel that I've lost muscle. The only location on me that could possibly show atrophy is on the inside of my elbow it looks slightly indented. I have noticed that outside of my fattened belly region, my shirts fit looser.
I do have fasciculations which are far more prominant on days I don't feel as well. I have gotten more jerks but not many of a finger or an arm. I and my fiancee have felt buzzing vibrating like motions at times. A week ago I moved a lot of items which made my right arm shake when holding a piece of paper. I do get
The few things that make me feel that it may not be als are the aches and pains I feel. Also those 3 weeks had me feeling as if my life was over, I was that weak/tired/fatigue for no reason whatsoever. Yet I have felt much much better and as have mentioned feel at best 80 to 90% of myself. These situations make me feel as if it may be something else but of course I am trying to hold onto any hope.
I know everyone presents differently and I may be one of them but was hoping to get some input that might help me. Please let me know if you think