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  • Hi Loulou
    My husband David has recently been diagnosed . I saw your post on triumeq and thought I should let you know that we were told by the clinical research team that if we were on the trial David could take TUDCA as long as it didn’t contain Sodium Phenylbutyrate. We are based in Australia and looking for a neurologist who will prescribe off label … can you help?
    Many thanks
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    Loulou22
    Sorry I just saw this message.
    I’m in Melbourne and attend Calvary Bethlehem clinic. My neurologist offered me triumeq.
    Could your husbands neuro or GP to write a referral to another neuro in the area, so they can write a script? Or perhaps a colleague they could refer you to?
    Also theres a Facebook group called Australia MND Group worth joining, many locals on there with a wealth of knowledge
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    Loulou22
    Sorry for lack of detail I can’t post more than 400 characters. Let me know if I can give you any more info
    F
    Frankie13
    Thanks so much for the info … we hoping to get more help with a different neurologist 🤞
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