life

  1. Tomswife

    Last weeks

    i am suggesting that the forum have some reliable, vetted resources to help members with questions about end of life. So when members need advice, point them elsewhere. It should not be the focus or role of this forum. Ie. Thats not what we're all about. I dont think it should be the...
  2. Tomswife

    The purpose in life is not to win. Rabbi Kushner

    Rabbi Harold Kushner, a practical public theologian whose best-selling books assured readers that bad things happen to good people because God is endowed with unlimited love and justice but exercises only finite power to prevent evil, died on April 27, 2023 in Canton, Mass. He was 88. Below...
  3. BlsdMama

    Accelerated death benefit / life insurance

    I have two policies and both have accelerated death benefit, meaning that I can collect half the policies before I die when I am deemed to have 12 months or less. I've been a very slow progressor, initially diagnosed with PLS, then SPS, then PLS again, and finally 1.5-2 years ago cementing the...
  4. I

    Very Fast Progression

    I was originally diagnosed with progressive bulbar palsy in January of 2018. At that time we were told that there was an excellent possibility of having several years before things really became troublesome. In April 2018 I had a PEG put in and speaking was no longer a possibility. My legs...
  5. C

    update on me

    Hi everyone, I haven't posted in a while and thought I would come on and give you a life update. Things had been going really well for me and my family. I went back to school for my Masters in Education and in general starting taking care of myself. Well long story short, I went in for my...
  6. G

    Father had Als concerned I do too

    Hello everyone, just want to say I am a firm believer of Jesus. So my symptoms started as having a hard time taking a deep breath and gasping for air. I went to the ER they took a chest xray and said it was asthma, they prescribed me a 6 day supply of steroids and sent me on my way. I took the...
  7. chally

    Chally Erb flies free

    Chally’s spirit left his body as he slept in the early morning hours of Wednesday April 3rd. He continued to live his life to the fullest despite ALS wrecking his body bit by bit. This forum and all of you were so important to him. He talked about this community of friends every day. He was...
  8. P

    Questions

    Hello everyone thank you for reading this and I appreciate all the responses. Back in October i really honed in on my twitches, as in I googled. I’ve always had my twitches but after googling of course my head was down in a spiral. I’ve seen 3 PCP at my universal hospital and they all tested...
  9. P

    Questions

    Hello everyone thank you for reading this and I appreciate all the responses. Back in October i really honed in on my twitches, as in I googled. I’ve always had my twitches but after googling of course my head was down in a spiral. I’ve seen 3 PCP at my universal hospital and they all tested...
  10. M

    EMG in the morning

    I’m having an EMG tomorrow in Houston. I’m obviously scared. 8 months ago I started having tight pain in hips, 2 months later mid back pain when standing gets worse as day goes on. 4 weeks ago legs start twitching all under skin feels weird. Mood has been depressed I’ve never felt like this in...
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