1. K

    Limb onset changing over to Bulbar

    Does this or can this happen? I asked my MND doctor and he told me no it doesn’t cross over. But it sure seems like I read something on this site? I searched but couldn’t find anything.
  2. L

    Told "probable" with strange onset

    Previous thread 33M diagnosed by neurologist as "probable" based solely on clinical exam and symptoms sent for follow ups to confirm and get treatment. Prior 1.5 years shortness of breath episodes during stressful situations. Would resolve quickly and never interfered with everyday...
  3. S

    Bulbar onset worries

    I am worried about Bulbar onset. In the last 6 weeks, I have had difficulty catching a full breath. I also have stiffness in my collarbone and shoulder areas. My swallowing is progressively more difficult and I have a weird feeling in roof of throat toward back. Overall upper body stiffness...
  4. Colleen15

    Bulbar onset - phlegm

    Bulbar onset, diagnosed March 2023. I Had a huge issue choking on phlegm today, after drinking tomato juice. Could not breath. What foods are best to avoid? And medications to reduce phlegm? Thank you.
  5. Colleen15

    Bulbar onset & the rest of my body

    Hi, Bulbar onset ALS diagnosed March 2023. Speech is horrible & eating very slow. Age 67. How long have people gone still able to walk, dress themselves, bath, feed themselves, ie. Be self sufficient at home ? Thank you.
  6. J

    Pls shoulders onset

    I got blocked for emailing members I won’t due it again. I have muscle wasting in my right shoulder it’s all bone and I have two frozen shoulders I can’t brush my hair put on jackets sweaters tops wash my hair. I read an old thread where frozen shoulder happens in a pls variant. Could this be pls?
  7. ChesterB

    Onset of respiratory symptoms

    I’m in my fourth year since my diagnosis and so far it’s been limbs only. Within the last month I’ve been experiencing increased shortness of breath especially when lying on my back. I’ve also developed a twitch in by diaphragm when I inhale. Are these symptoms typical for someone at my stage of...
  8. jethro

    Question to bulbar pals

    i'm still fighting. started with a limb onset, spread all over my body, but took only my right foot. by now. maybe my lungs are weaker. it started in oct. 2018. with bulbar - i lost taste completely, continued to cough. it was not having any problems with breath by then, and my cough progressed...
  9. J

    Please do not be too quick to say NO to possible ALS diagnosis

    About 3-4 years ago I came to this forum and asked the dreaded question "Do I have ALS". I had some fasciculations and cramping in my feet, balance issues, spasticity in both legs and slight speech changes. I was assured by members that my symptoms were NOT symptoms of ALS and I went merrily...
  10. D

    Wholeheartedly Believe It's Bulbar Onset

    Hi All, I sincerely apologise for coming on here again. (Last here in 2012). I just wanted to put my thoughts down into words due to the worry it is causing. Firstly I’m a 34 year old male who is very overweight and leads a very sedentary lifestyle I have had a large variety of symptoms which...