1. J

    Pls shoulders onset

    I got blocked for emailing members I won’t due it again. I have muscle wasting in my right shoulder it’s all bone and I have two frozen shoulders I can’t brush my hair put on jackets sweaters tops wash my hair. I read an old thread where frozen shoulder happens in a pls variant. Could this be pls?
  2. ChesterB

    Onset of respiratory symptoms

    I’m in my fourth year since my diagnosis and so far it’s been limbs only. Within the last month I’ve been experiencing increased shortness of breath especially when lying on my back. I’ve also developed a twitch in by diaphragm when I inhale. Are these symptoms typical for someone at my stage of...
  3. jethro

    Question to bulbar pals

    i'm still fighting. started with a limb onset, spread all over my body, but took only my right foot. by now. maybe my lungs are weaker. it started in oct. 2018. with bulbar - i lost taste completely, continued to cough. it was not having any problems with breath by then, and my cough progressed...
  4. J

    Please do not be too quick to say NO to possible ALS diagnosis

    About 3-4 years ago I came to this forum and asked the dreaded question "Do I have ALS". I had some fasciculations and cramping in my feet, balance issues, spasticity in both legs and slight speech changes. I was assured by members that my symptoms were NOT symptoms of ALS and I went merrily...
  5. D

    Wholeheartedly Believe It's Bulbar Onset

    Hi All, I sincerely apologise for coming on here again. (Last here in 2012). I just wanted to put my thoughts down into words due to the worry it is causing. Firstly I’m a 34 year old male who is very overweight and leads a very sedentary lifestyle I have had a large variety of symptoms which...
  6. I

    Very Fast Progression

    I was originally diagnosed with progressive bulbar palsy in January of 2018. At that time we were told that there was an excellent possibility of having several years before things really became troublesome. In April 2018 I had a PEG put in and speaking was no longer a possibility. My legs...
  7. K

    Drastic change in breathing

    Hi everyone. My dad was diagnosed March 2018 with ALS. He has limb onset. His breathing, swallowing and talking have not been affected as of yet. ... so we thought. Today he had a breathing test. His score is December 2018 was 92 and today it was in the low 60s. That seems like a drastic change...
  8. S


    Hi, I know I have been here before but I just have a quick question and I don’t want to google.... I have body wide fasics- for over a year, no weakness but feel like I have mouth throat pnd drip issues, constant phlegm. My question- when someone has bulber, and they have bodywide...
  9. K

    Club membership at hand

    Well, damn. My local neurologist, after two months of elimination tests, has now indicated likely NMD, with ALS being the most likely candidate. He basically kicked the can down the road and referred me to Dr. Pulley at Jacksonville Shands. We see him in late April for a second EMG and opinion...
  10. C

    Scared that I might have onset als.

    Started 2 months ago with a twitch in my arm. Fast forward to now, it’s all over but mostly in my tongue.Since it has started in my tongue about 5 days ago, I sigh and yawn a lot. Also get random 1 hiccup throughout the day everyday even when I haven’t eaten. I’m sorry if I have burdened anyone...