problems

  1. ChesterB

    Problems with bowel movements

    I've been experiencing difficult BM's for about a month and I'm seeking advice from my fellow PALS. It seems that my BM's lately have become difficult or impossible despite constant use of MiraLax, other fiber laxatives, and even prune juice. My ALS doctor said that it's constipation, but I...
  2. J

    For all the anxious twitchers with clean EMG...

    Hello! After reading a lot, searching a lot, I realized something that definitely reassured me. I thought it might help other people who are anxious ... (Sorry for my english, it's not my first langage :) ) ALS combines problems of upper and lower motor neurons. Each pathway has its own...
    • JulieBS
    • Thread
    • abdominal clean emg emg fasciculations free motor neuron disease muscle muscle twitching paralysis problems reading symptoms twitching
    • Replies: 4
    • Forum: Could this be ALS?
  3. R

    Breathing Problem

    My wife sometimes at night or day depends on the position of complaining about breathing problems, always helps open the window, today I arranged for a oxygen concentrator. We don't know anout any result becouse she has stared use from 30min. Are there any other methods to improve breathing? I...
    • rafiksq
    • Thread
    • breathing breathing problems crying night nose oxygen please help please help me problem problems respiratory
    • Replies: 14
    • Forum: Tips, tricks, and gadgets
  4. jethro

    Question to bulbar pals

    i'm still fighting. started with a limb onset, spread all over my body, but took only my right foot. by now. maybe my lungs are weaker. it started in oct. 2018. with bulbar - i lost taste completely, continued to cough. it was not having any problems with breath by then, and my cough progressed...
  5. D

    Wholeheartedly Believe It's Bulbar Onset

    Hi All, I sincerely apologise for coming on here again. (Last here in 2012). I just wanted to put my thoughts down into words due to the worry it is causing. Firstly I’m a 34 year old male who is very overweight and leads a very sedentary lifestyle I have had a large variety of symptoms which...
    • Dazzaschofield
    • Thread
    • ability als back bulbar bulbar onset choke dry mouth eating eye food foot immediately love neurologist onset problem problems saliva sleep swallowing symptoms twitching wanted worry wrong
    • Replies: 22
    • Forum: Could this be ALS?
  6. swalker

    Lithium Battery for Magic Mobility X4

    I am not sure where to put this, so will put it here. Mods, please feel free to move this to a more appropriate forum. As some of you probably read in the PALS checkin post, last Sunday we installed a home-built lithium battery pack in my Magic Mobility X4. I will provide some details in this...
  7. F

    No diagnosis but something is off

    Dear all, thank you very much for taking the time to read this and I wish all of you the very best. I have read the stickies and I know that a lot points away from ALS, however my neurologist cannot really tell me what is going on so I thought I'd ask. I don't know if it is related but in...
    • Footers
    • Thread
    • als arm back diagnosed diagnosis emg fasciculations foot lyme lyme disease mri neurologist no diagnosis problems story stupid tests thenar twitches twitching weakness worried worries
    • Replies: 18
    • Forum: Could this be ALS?
  8. M

    I have real weakness - please help

    I haven’t been here in a while. Busy having kids and all that. I had a baby six months ago and have not really been paying attention to myself. I have noticed thought that I am unable to lift things with my right arm when it is extended I’m a certain way. I became curious so I tried lifting...
    • mathilda32
    • Thread
    • arm kids lift muscle onset please help problems shoulder symptom weakness worry
    • Replies: 22
    • Forum: Could this be ALS?
  9. KarenNWendyn

    Biology research project

    There was a biology student who was studying equilibrium in sea birds with a specific focus on terns. He proposed that giving measured doses of THC (from, of course, marijuana) and observing their flight patterns would give some insight to the problems of equilibrium in three dimensional space...
  10. J

    Neudexta

    Hello everyone, I was wondering if neudexta is safe to take for an als patient that doesnt have pba. Ive managed to get the medication from someone in the states. My pals is taking amitriptyline pills and cbd oil both for sleep and to help with mucus problems. she is having difficulty talking...
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