problems

  1. J

    For all the anxious twitchers with clean EMG...

    Hello! After reading a lot, searching a lot, I realized something that definitely reassured me. I thought it might help other people who are anxious ... (Sorry for my english, it's not my first langage :) ) ALS combines problems of upper and lower motor neurons. Each pathway has its own...
  2. R

    Breathing Problem

    My wife sometimes at night or day depends on the position of complaining about breathing problems, always helps open the window, today I arranged for a oxygen concentrator. We don't know anout any result becouse she has stared use from 30min. Are there any other methods to improve breathing? I...
  3. jethro

    Question to bulbar pals

    i'm still fighting. started with a limb onset, spread all over my body, but took only my right foot. by now. maybe my lungs are weaker. it started in oct. 2018. with bulbar - i lost taste completely, continued to cough. it was not having any problems with breath by then, and my cough progressed...
  4. D

    Wholeheartedly Believe It's Bulbar Onset

    Hi All, I sincerely apologise for coming on here again. (Last here in 2012). I just wanted to put my thoughts down into words due to the worry it is causing. Firstly I’m a 34 year old male who is very overweight and leads a very sedentary lifestyle I have had a large variety of symptoms which...
  5. swalker

    Lithium Battery for Magic Mobility X4

    I am not sure where to put this, so will put it here. Mods, please feel free to move this to a more appropriate forum. As some of you probably read in the PALS checkin post, last Sunday we installed a home-built lithium battery pack in my Magic Mobility X4. I will provide some details in this...
  6. F

    No diagnosis but something is off

    Dear all, thank you very much for taking the time to read this and I wish all of you the very best. I have read the stickies and I know that a lot points away from ALS, however my neurologist cannot really tell me what is going on so I thought I'd ask. I don't know if it is related but in...
  7. M

    I have real weakness - please help

    I haven’t been here in a while. Busy having kids and all that. I had a baby six months ago and have not really been paying attention to myself. I have noticed thought that I am unable to lift things with my right arm when it is extended I’m a certain way. I became curious so I tried lifting...
  8. KarenNWendyn

    Biology research project

    There was a biology student who was studying equilibrium in sea birds with a specific focus on terns. He proposed that giving measured doses of THC (from, of course, marijuana) and observing their flight patterns would give some insight to the problems of equilibrium in three dimensional space...
  9. J

    Neudexta

    Hello everyone, I was wondering if neudexta is safe to take for an als patient that doesnt have pba. Ive managed to get the medication from someone in the states. My pals is taking amitriptyline pills and cbd oil both for sleep and to help with mucus problems. she is having difficulty talking...
  10. F

    Concerned after initial neuro exam

    Hello, everyone. I was just wondering if I would be able to get some feedback and opinions from the wonderful people on this forum. I realize you guys get a lot of questions regarding things don't seem to be related to ALS, so I apologize in advance if I go down the same path. First of all, I...
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