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  1. D

    Wholeheartedly Believe It's Bulbar Onset

    Hi All, I sincerely apologise for coming on here again. (Last here in 2012). I just wanted to put my thoughts down into words due to the worry it is causing. Firstly I’m a 34 year old male who is very overweight and leads a very sedentary lifestyle I have had a large variety of symptoms which...
  2. K

    Thoughts on When to Get Hospice

    My PALS and I have decided to use hospice when the time is right. He uses a Trilogy about 17 hours a day, does not want to be trached or have a PEG. He is able to eat whatever he wants (with the help of water to wash it down), he transfers from scooter to chair/commode but anything he does is...
  3. Lkaibel

    The Next Part of the Journey

    So, here I am exactly one week out from my husband's death. It was really only after he actually passed that I have started to realize the absolute hellfire we went through together. There was beauty, love, and moments of joy for sure. I am very sure I never felt closer to or loved another...
  4. L

    Als fears

    Hello everyone. I'm new on here have alot of fears and anxiety about ALS. I have not been diagnosed. I've had four opinions from 4 different doctors that say I do not have that. I do have an EMG schedule in 3 weeks. I've been having a lot of pain in my legs feet arms. I would say minimal...
  5. J

    My right arm weakness just became right arm failure

    Please do not delete..my post from a week ago got closed (below) https://www.alsforums.com/forum/do-i-have-als-als/43811-nervous-i-have-als-just-saw-neurologist.html I previously posted about perceived left and right arm weekeness that my neuromuscular specialist ruled out 11 days ago as not...
  6. kitkat

    Choices

    My PALS finally received his PWC a couple weeks ago. He should have received it almost a year ago, but miscommunications & ball dropping happened. It is set up with a head array so he can drive it, and a joystick in the back so I can drive it. Unfortunately, his neck has gotten so weak, he is...
  7. M

    Is this Bulbar PLS/ALS?

    Hi so to start with I’m male age 26 So a few months ago I got rapid heartbeat tachycardia (I know not often a symptom of MND), They found no cardiac explanation, then started getting muscle twitches which I still get sometimes, again no obvious explanation. I noticed a panting in my throat...
  8. D

    Worried

    Hey everyone, thanks for reading. I am a 24 year old girl, no family history of ALS. I KNOW that I have health anxiety but I can’t seem to shake the idea that what I’m experiencing might be ALS. So two weeks ago I was home and my finger was twitching. Naturally I panicked and googled and ALS...
  9. M

    Could you help me out with my symptoms?

    I’m so sorry to be posting here, I just feel so nervous and can’t get into the neuro for a few months. Thank you for taking time to read this. I have had muscle weak in my right arm since November to the point it’s hard to lift my arm to brush my hair. I now have it in my left arm as well, also...
  10. J

    I feel alone and need guidance and help.

    Hello my Name is John 27 and I can really use som help and guidance, I’ve never been in such a hole in my life. A week and a half ago Thursday I noticed this twitch in the bottom of my lip and for the most part would not go away. It started to get stressed out about it googling symptoms and...
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