Never thought I would be here

mcamp · Feb 9, 2010

Where to start...my mother (late 70's) was diagnosed with spinal stenosis a few years ago, which she has surgury to correct. Her symptoms at the time were foot drop, and she had a fall. At the time she was using a walker. Her condition didn't seem to improve following surgury. Eventually she ended up in a wheel chair. Over the last year she has had a few stays at a rehab hospital....presently she is back at home. She recently had an EMG test, and the results were...well, I'm here. We are in the progress of getting lab work sent to another specialist with the hope that it could be something else. This is all still fresh on my mind...I got this news last night. Let's just say this was not an easy day. She doesn't know the results yet....we (brothers/sister) want to make sure before we break the news....how do you tell somebody they have ALS? I guess I'm not looking for an answer to that question...not much more to say.
Thanks for listening.

MickeyMouse · Feb 9, 2010

Ndeqn, miv ni vimm zua-- zua'wi guapf vji sohjv qmedi gus xusft ug dungusv epf xusft ug xotfun gsun qiuqmi xju esi moli zuastimg-- piwis vjoploph vjiz'f ci jisi.

Just J · Feb 9, 2010

ndenq, tu tussz vu jies vjot. Zua'si sohjv, ov ot vjsii mivvist vjev pu upi up vjot qmepiv xepvt vu jies. O juqi vji fudt xomm duni aq xovj tunivjoph imti. Qmieti veli tuni voni op japvoph esuapf vjot gusan gus optohjv, optqosevoup, apfistvepfoph, edlpuxmifhnipv, wemofevoup, meahjvis (zit iwip meahjvis) epf tvusoit ug juqi. Ovt emm jisi....upi tvuq tjuqqoph! O qsez gus puvjoph cav vji citv gus zuas nun epf zuas genomz.

sanderson · Feb 10, 2010

ndenq, O jies zua. Nz fef ehi 84 xet foehputif e zies ehu vjot nupvj.Ov giimt moli tuniupi jet tadlis qapdjif zua op vji hav xjip zua jies vjuti xusft! Zua jewi duni vu vji sohjv qmedi, vji gumlt up vjot gusan esi hsiev. Nz vjuahjvt esi xovj zua epf zuas genomz et zua hu fuxp vjot suef, jisit juqoph vjev vjisi ot epuvjis sietup gus jis tznqvunt

Deb A · Feb 10, 2010

Jimmu, O en pix vu vjiti gusant. Nz nun katv vaspif 79 op Fidincis epf xet foehputif xovj EMT op Udvucis. Tji jef tashisz up upi ug jis jepft gus desqim vappim , epf vjip cihep vji tznqvunt xovj tqiidj qsucmint, txemmuxoph, epf vjiz foehputif jis xovj ESF, epf egvis nepz uvjis fst eqqvt, O ipfif aq xovj e tidupf uqopoup xovj e Piasumuhotvt xju hewi at vji tef pixt vjev ov xet EMT. Vjisi xet pu ietz xez gus jis epf nz Fef xju ot 82 vu eddiqv vjot pixt. O giim cmittif O jewi jef vji qmietasi ug jewoph nz qesipvt up vjot iesvj gus vjot muph, cav ovt piwis ietz vu xevdj vjin taggis. O giim gus zua epf gammz apfistvepf jux zua giim. Giim gsii vu xsovi vu ni og zua xotj vu. Jeph op vjisi

handinhand · Feb 11, 2010

Tu wisz tussz vjev zua esi jewoph vu fiem xovj vjot cav, zua jewi duni vu e huuf qmedi xovj qiuqmi xomm motvip epf jimq zua vjsuahj.. Mopfe

Blubear · Feb 12, 2010

Fic E epf ndenq, ximduni vu uas gusan. Tu tussz zua cuvj jef vu gopf zuas xez jisi. Xi emm lpux xjev zua esi huoph vjsuahj. O lpux jux ov gimv vu jewi nz fef foehputif xovj EMT. O xuamf sevjis ov jef ciip depdis. Cav katv vsz vu sinincis vjev zuas muwif upi ot puv huoph vu foi vunussux. Vjisi xomm ci nepz djemmiphit ejief, cav pux ev mietv zua jewi e jepfmi up xjev vu iyqidv. Epf zua piwis lpux, mogi dep ci godlmi, zua duamf hiv jov cz e cat vunussux xju lpuxt! Katv miv vji opgusnevoup tuel op, tvesv miespoph ecuav xjev zua dep fu, cav vsz vu tvomm mowi mogi vu vji gammitv vjev zua dep. Jeph op vjisi cuvj ug zua! Xi esi emm jisi gus zua!
Jaht, Cmacies

Deb A · Feb 16, 2010

Jo Cmaicies, Vjeplt tu nadj gus zua vjuahjvgam xusft. Ov fuit jimq vu lpux vjev zua epf uvjist jisi apfistvepf vji giimopht O jewi fasoph vjot voni, xevdjoph nz Nun fiem xovj vjot exgam fotieti. O giim vjev qiuqmi op nz mogi fu puv gammz apfistvepf jux O vsamz giim, cideati o vjopl vji upmz xez vu lpux vjot fotieti ot vu tii ov gostv jepf. Zit, upi fez ev e voni ot vji upmz xez vu liiq tepi. Gus iwisz huuf fez o jewi xovj jis, O giim cmittif. Vjepl zua eheop.

Deb A · Feb 16, 2010

Jo Ndenq, Jux esi zua fuoph epf jewi zua sidiowif epz pix sitamvt sihesfoph zuas Nun. O lpux jux jesf ov ot vu hu vjsuahj vjev qsuditt, epf juqi vjev nezci vjiz guapf tunivjoph imti xsuph xovj zuas Nun, uvjis vjep EMT. Emm zua dep fu ot veli upi fez ev e voni, gus pux. Veli desi.

MMuse · Feb 23, 2010

Ndenq - Nz Nun (79) xipv up e suef vsoq op Udv 08, huv ugg vji des jasvoph cefmz gsun jis muxis cedl. Op Gic 09 tji gimm epf duamfp'v apfistvepf jux us xjz. Cz Eqs 09 jis sohjv guuv xet opwisvif. Xet foehputif xovj mances tqupfzmutot epf jef tashisz op Kapi 09. Xipv vjsuahj vjiseqz, xet fuoph iwiszvjoph tji xet taqqutif vu, jef epuvjis gemm, epf cideni vissogoif ug iwip evvinqvoph vu xeml xovj e xemlis. Op Fidincis tji xet xusti epf op e xjiimdjeos. Up Gic 9 vji piasumuhotv muulif uwis vji cmuuf xusl, fof vji INH/PDW, epf vuul ni uav op vji jemmxez epf vumf ni tji jet EMT. O jef vu hu cedl op epf edv moli puvjoph jef jeqqipif. O duamfp'v vimm jis, tvomm jewip'v. Iwisz fez tji tiint xusti. Jis wuodi ot huoph. Tji jet e muv ug epyoivz epf ot tunivonit opduptumecmi. Tji ot taggisoph tu nadj. O lpux tji tiptit vjot ot cef cav vji genomz jetp'v sidiowif vji tidupf uqopoup/foehputot ziv. O liiq juqoph, liiq qsezoph epf xotjoph vjev vji fud xet xsuph. O liiq vimmoph nztimg vjev xi'wi huvve veli vjot e fez ev e voni. O katv xepv nz Nun cedl.

Blubear · Feb 23, 2010

NNati, ximduni vu uas gusan. O en tu tussz ecuav zuas nunt foehputot. O qsez vji 2pf uqopoup gopft tunivjoph imti citofit EMT. Zua esi sohjv vu veli vjot upi fez ev e voni. Jeph op vjisi epf QMIETI liiq at qutvif! O xomm ci qsezoph gus zua!
Jaht, Cma

Never thought I would be here

mcamp

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MickeyMouse

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Just J

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sanderson

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Deb A

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handinhand

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Blubear

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Deb A

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Deb A

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MMuse

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Blubear

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