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First off, my heart goes out to all of you. You are so incredibly brave and generous with sharing your time, experience and support. My husband walked into a neurologist's office with symmetrical muscle weakness and walked out with a diagnosis of ALS. Some background - My husband is 51 and...

Hi everyone. I've been having a lot of muscle twitches mostly in my calf areas and thighs but all over as well. Also my left calf feels weaker than my right even though I can still walk around on my tip toes and heels on both feet. Another thing I noticed is that it is difficult to straighten...

Hi everyone. My dad was diagnosed March 2018 with ALS. He has limb onset. His breathing, swallowing and talking have not been affected as of yet. ... so we thought. Today he had a breathing test. His score is December 2018 was 92 and today it was in the low 60s. That seems like a drastic change...

Hello everyone, just want to say I am a firm believer of Jesus. So my symptoms started as having a hard time taking a deep breath and gasping for air. I went to the ER they took a chest xray and said it was asthma, they prescribed me a 6 day supply of steroids and sent me on my way. I took the...

Hi my issue started in Nov was cooking bad pain in right hand went to doc blood test xray all fine physio noticed atrophy in my hand between thumb and forefinger went to neuro she didn't think I had adl had a emg result one slightly abnormal muscle in hand all others OK ongoing tingling numbness...

Thank you all for taking the time to read my post and I would appreciate any advice or knowledge you can pass on. I have read the "before you post sticky". So this all started the the 1st week in Dec, I woke up 1 morning and had a persistent twitch in my left thigh. It prob went on 4-5 days...

This is my 1st post on this site and I want to say I really admire how nice and helpful everyone who responds on this site is. The fact that you take the time out of your days to help people who have questions is really remarkable. I've been looking at posts on this site for a few months and...

So, here I am exactly one week out from my husband's death. It was really only after he actually passed that I have started to realize the absolute hellfire we went through together. There was beauty, love, and moments of joy for sure. I am very sure I never felt closer to or loved another...

Hello to all, I am concerned about a couple things going on, and hoping you guys would be able to help me, or give me some ideas on my next step. Everything started about a 1.5-2 years ago. I flew up to Montana for the week to spend time with family. Had a good trip until the end when I got...

Thank you for taking the time to read what I have going on. I am a 44 years old mom of two adult children and a 10 year old. Last month, my boss called an ambulance and had me taken to the hospital because I was having problems talking, couldn’t swallow and couldn’t lift my leg and I panicked...