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Thank YOU Wright!

For those genuinely wanting to learn and not panic themselves, please go to the "Do I Have ALS" Thread and read the "stickys" at the top. There are several that will answer most of your questions before you even send a first note. There are some brilliant people on this forum who will be there with information and compassion. Please be considerate of the fact that this disease is their REALITY...
Peace,
Melody
 
SpringOwl,

Great, you are going for the emg tomorrow! I can say one thing. I too have a foot drop. No reason for the cause yet (like you). I came here after my emg & never thought to even ask my Dr about it. Someone mentioned it to me AFTER the fact & thats when I started my research which led me here.

I feel theres a reason why the people here are saying that a clean emg will rule out als if caused by LMN , both you & I have (Footdrop/lmn ). They have no reason to lie & Im glad I came here because I would be STILL driving myself crazy thinking that I may have als.

Read the stickys at the top of all the threads. I think one is by Halfin. It explains that an EMG will detect the nerves dying before the weakness sets in. Footdrop is definately weakness!

Get your emg first! I will & Im sure these gracious people here will be praying its clean. I hope, then, you can come back & feel comforted by knowing the emg did indeed rule out als. While you are there, ASK your DR also. This is the best person to ask, If The Emg will rule out als. Its what we pay them for! Ask ALL your questions.

Please, come back here & let us know what the outcome is, either way. I got my results as the neurologist was performing the emg. You should know tomorrow.

Hang in there! We are all stressed w/ worry, obviously, but If they tell me here that the emg would pick up als, I have no reason to believe anyone here would say that unless they were sure. We are all here to help one another in whatever fashion that may come,

Good luck tomorrow!

Joe

Really wish I could say more
 
Just wanted to wish you luck on your emg tomorrow, I will say a special prayer. As a mother I know how concerned you feel. Think good thoughts tonight!
 
I feel theres a reason why the people here are saying that a clean emg will rule out als if caused by LMN , both you & I have (Footdrop/lmn ). They have no reason to lie & Im glad I came here because I would be STILL driving myself crazy thinking that I may have als.

From one of the sticky threads in this very forum:

https://www.alsforums.com/forum/do-...ic-lateral-sclerosis-diagnosis.html#post68793

----------

Clinically Definite ALS

is defined on clinical evidence alone by the presence of UMN, as well as LMN signs, in three regions.

Clinically Probable ALS

is defined on clinical evidence alone by UMN and LMN signs in at least two regions with some UMN signs necessarily rostral to (above) the LMN signs.

The terms Clinically Probable ALS - Laboratory-supported and Clinically Possible ALS are used to describe these categories of clinical certainty on clinical and criteria or only clinical criteria:

Clinically Probable - Laboratory-upported ALS

is defined when clinical signs of UMN and LMN dysfunction are in only one region, or when UMN signs alone are present in one region, and LMN signs defined by EMG criteria are present in at least two limbs, with proper application of neuroimaging and clinical laboratory protocols to exclude other causes.

Clinically Possible ALS

is defined when clinical signs of UMN and LMN dysfunction are found together in only one region or UMN signs are found alone in two or more regions; or LMN signs are found rostral to UMN signs and the diagnosis of Clinically Probable - Laboratory-supported ALS cannot be proven by evidence on clinical grounds in conjunction with electrodiagnostic, neurophysiologic, neuroimaging or clinical laboratory studies. Other diagnoses must have been excluded to accept a diagnosis of Clinically possible ALS.

Clinically Suspected ALS

it is a pure LMN syndrome, wherein the diagnosis of ALS could not be regarded as sufficiently certain to include the patient in a research study. Hence, this category is deleted from the revised El Escorial Criteria for the Diagnosis of ALS.
---------

Please note that lower motor neuron damage symptoms are required to be present before a diagnosis of even suspected ALS can be given. You cannot have ALS without both UMN and LMN symptoms any more than you can have Type 2 adult onset diabetes without having high blood glucose levels. It really is that simple.

The type of lower motor neuron damage that is characteristic of ALS shows up on an EMG.

1) If that type of damage shows up on your EMG, your doctor will not say that your EMG is normal.
2) If your doctor says your EMG is normal, then you do not have that type of LMN damage.
3) If you don't have that type of LMN damage, you don't have ALS.

Really, folks, what is so difficult to understand?
 
Wright come on dude!
You know there are cases mentioned here that had clean emg and ended up with ALS
The most important cases here that have to been talked about are those who had fascicualtions and clean EMG and later still DX ALS.
So the ones that were gives diagnosed BFS.

- Lori was given BFS at first
- Quabliss was given BFS
- AVC: 2 clean EMG with twitching
- scared of ALS: 5! clean EMG's

I know I read others, if I may I will post them
 
ok!
quabliss may have started with umn involvement first...............as wright said in these cases an emg can be clean at first.

pls/umn disease can change to als within 3-5yrs of onset.

avc
dont know who that is but probably the same scenario as quabliss.

scared of als
we were told she had a mnd diagnosed,what mnd we dont know.

lorie
a friend of mine has not had any diagnosed of any kind at this point in time.


before throwing supposed evidence of other peoples medical criteria you need to check its accurate first.
i have pls but do have hypotonia in my left leg that does show on an emg...............yet i dont have als.
its not just the emg but a whole spectrum of signs/symptoms and progression.
 
Sorry Al, I know this post might get me banned for a couple of weeks but this guy is destructive to say the least. I also must apologize to those on this forum if I offend you in any way but I have stayed on this forum to help and I feel this needs to be done to help.

Whatsgoingon

"Come on dude?" as you posted. Please stop smoking whatever it is you're smoking, because it's clouding your judgment and obviously destroying the few brain cells that you have left. You're a bigger moron than I thought.

You have absolutely NO IDEA what you're talking about and couldn't be more wrong. As I said in a previous post, the only thing you appear to know about ALS and EMG is how to spell them, although I'm beginning to think that you don't even know how to do that.

This is something that I addressed in another thread by SilverLining just last night (go read it if you have the ability) but I'll do it again:

Quadbliss was never given an EMG before he got that initial diagnosis . . . Lori had a dirty EMG from the very beginning, but because you have no idea what you're talking about, you wouldn't know that from reading her posts . . . and . . . as was correctly stated by Olly, she hasn't been diagnosed with ALS. I have no idea who AVC is or who ScaredofALS is but I'm sure those stories are easily explained as well. I have addressed other instances in the aforementioned thread.

Now go crawl under your little "dude" rock and leave the nice people of this forum alone, you idiot.

Once again, I apologize Al et al (not to you "whatsgoingon") and I will accept the consequences of this post.
 
[Background music from the Oz scene where the MONKEY'S are turned LOOSE!]

whatsgoingon, WHAT IS GOING ON?! You registered in June 09 with symptoms of twitching. You have not progressed-right? WHY DO YOU WANT ALS? Ok, I can ask the Wizard to grant your wish! I have copied and pasted my reply to you from another thread that you NEVER had the courtesy to answer. I believe that was from the 21st of March when I had posted a reply to someone that is NEWLY diagnosed with ALS and you sent me a private message. Are you willing to answer the questions or are you going to continue to hide behind your no information?

I got this in my PM this morning. I have included my reply in the hope that it will somehow create some awareness for the individuals that are obsessed with having this disease and flood the forum with repeated posts when they have been told that they do NOT have ALS. This is exactly why I seldom ever visit this thread.

whatsgoingon said:
Hi indigosd,
In Dupuytren’s disease, abnormalities can occur in fibrous tissues in areas other than the palm of the hand. This is known as ectopic
(pronounced “ehk TAH pik”) disease. Individuals with more severe, rapidly progressing Dupuytren’s disease are more likely to develop these conditions. Other areas affected include:
Knuckles ( Garrod’s pads ): enlargement of the knuckles can develop before other signs
Feet ( Ledderhose disease ): changes in the fascia underlying the skin on the underside of the feet cause nodules and can lead to contracture of the toes
Penis ( Peyronie’s disease ): curvature of the penis
What do you mean with ' are more likely to develop these conditions? ALS, that people with one of those diseases are more likely to develop ALS?

whatsgoingon,
I did not write the article-it is copied and pasted from the link that is included. If you read the article you will see that it means that if someone has Duputren's Disease they are more likely to have additional ECTOPIC DISEASES! There is no documented correlation with ALS! I went to your wall and read your posts. You are diagnosed with BFS. Go and enjoy your life. :] NO ONE WANTS THIS DISEASE. I seldom ever go to the "Do I have ALS" thread for several reasons-1. I have a husband that is dying from this ghastly disease. 2. I do not have the time or the patience to reassure individuals that for some bizarre reason want to have this disease. 3. I am not a Neurologist. 4. I am a RN with a very developed BS Radar. 5. I question anyone's motive who will ask personal questions/send private emails and will not even post their City, State, or Country to say nothing about their age or if they are male or female. 6. Individuals that keep posting and filling up the forum and wasting the time and energy of the forum family that REALLY HAVE ALS with REPEATED complaints of "twitching" or "tired" or "my toe doesn't bend" makes the MONKEY'S very crabby. Have you ever heard, "Be careful what you wish for" or "What you believe you will make manifest in your life"? I would celebrate if my Husband had a diagnosed of BFS! The big question for you is to explore why you are obsessed with your symptoms and thinking that it may be ALS when you have had the testing done and been told that it is not ALS...? I sincerely hope that you will stop looking for ALS and go and enjoy the fact that you can EAT, SWALLOW, TALK, WALK, WHISTLE, KISS and WIPE YOU OWN BOTTOM to name just few of the things that are missing from the life of PALS.
I am sincerely sorry if this bluntness offends you but you did pm me.

SpringOwl, Silverlining and all the rest that flood the forum with this garbage and cause so much dissension. Enough already! IF you want the diagnosed so darn bad go ask the WIZARD! Until then, STOP IT!

Do you "wanna be PALS" understand how your obsession with this disease makes life for diagnosed PALS living hell? Your repeated visits to Neurologists may be the cause that honest to goodness PALS can not get in to see a Neurologist for 6 months! Your endless testing that is unnecessary DRIVES UP HEALTH CARE COSTS! Your unfounded complaints do not help us in our battle to be recognized as a REAL DISEASE! Your repeated posts and arguing with the PALS and CALS that took the time to reply to your posts are beyond irresponsible and disrespect. Wright gives solid, factual information and does it because he sincerely cares. His BS radar is very well developed and he doesn't mince words. Wright, you do know that you were flamethrowing and throwing rocks, right? [I was shocked but the MONKEY's LOVED IT!] Al, maybe you should ban the Wannabe's? If you ban Wright, please also ban me.
 
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WOOHOO!
indigosed,you let them monkeys rip girl.:twisted:
 
I feel like circling a wagon around all my forum family members and sending a witch doctor out to slap the crazies out of everyone else! WTH is goin' on out there! I would LOVE it if all the sane forum members out there would just retreat from these threads for awhile.

Wright...your words of knowledge and clarity are not being appreciated, so don't wast any more energy on these folks!

20 more minutes before howling time!
 
I'm warming up my vocal chords... Ahhhhhoooooo!
 
Actually Wright I laffed my butt off. Some of these whacko's the past couple of weeks are really trying my patience. If I wasn't such an understanding person (fool) my wife says, I'd have banned them after the first few posts. The weeks not over yet. Keep being the help that you are. I appreciate it.

AL.
 
No, I don't want to be a pals this being my first post is shocking to me.

Granted I am afraid and whiney but a drain on the medical system and a whacko is a bit more than I bargained for.

I may not have ALS but I do have serious problems like foot drop, positive.
Babinski, progression to my arm and hand that no longer work.

I have spent over 12,000 over the past three years on doctors that have given me no diagnosis.

This forum thread is for people to ask questions for help. I did not intend for people to quarrel but I guess that goes with the territory.

You all must have had questions at one time and are still learning. This was my first post ever and not with a hangnail or a twitch.
I have been lurking for over a week and by the posts I read you sound so together mentally and strong and funny I am sad that anyone would think I would want any disease.

I am just a scared mother who wanted some different opinions.

Thank you.

I did get the emg and it was clean. I may not have ALS but I have progressing problems and I am going to be sent to a specialist.

And all of you who say don't use dr. Google, I can guarantee do the same thing when there is a question they want to research. We all do it. Whacko's and non whacko's alike.
 
OK springowl, as Wright says, clean EMG= no ALS. Right now you have something else. You might get ALS later but then I could get a pinched nerve next week and have symptoms like yours. Let the doctors diagnose you, not a bunch of whacko's on the internet.

AL.
 
OK springowl, as Wright says, clean EMG= no ALS. Right now you have something else. You might get ALS later but then I could get a pinched nerve next week and have symptoms like yours. Let the doctors diagnose you, not a bunch of whacko's on the internet.

AL.

:D That's some solid life advice right there! I wish more people would listen to it...
 
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