ball

  1. K

    Club membership at hand

    Well, damn. My local neurologist, after two months of elimination tests, has now indicated likely NMD, with ALS being the most likely candidate. He basically kicked the can down the road and referred me to Dr. Pulley at Jacksonville Shands. We see him in late April for a second EMG and opinion...
  2. K

    Choices

    My PALS finally received his PWC a couple weeks ago. He should have received it almost a year ago, but miscommunications & ball dropping happened. It is set up with a head array so he can drive it, and a joystick in the back so I can drive it. Unfortunately, his neck has gotten so weak, he is...
  3. W

    Atrophy + Fasciculations

    I am a 28 year old white male. After playing basketball 5 months ago, I developed severe pain in between my traps (more towards the right), and it hurt to turn my head to the right. Shortly thereafter, I developed numbness in my index and middle finger (aware these aren't ALS symptoms, but bare...
  4. S

    We are stuck and need advice

    I have had 2 accidents now and I just dont understand how it's not ALS related. Both now I have been in the bathroom on time but as soon as I see the toilet I cant hold it anymore and it all comes out. Is this normal? Plus my hair is so greasy and my hair on my head and eyelashes are getting...
  5. Vincent

    Nose bleeds.

    While this is usually used in reference to where I sit at ball games, I have issues with my nose bleeding or there is blood when I blow my nose. I use a bipap at night and more during the day. Yes I have a humidifier attached to the bipap. Is this just a thing that goes with bipap or has someone...
  6. KarenNWendyn

    Cinderella

    Warning: Adult content Cinderella wants to go to the ball, but her wicked stepmother won't let her. As Cinderella sits crying in the garden, her fairy godmother appears, and promises to provide Cinderella with everything she needs to go to the ball, but only on two conditions. "First, you...
  7. M

    Possibly ALS?

    Hello Everyone, Let me start by saying I have been in here for a month now reading up on discussions and symptoms and I have read through the stickies as well. Just wanted to say the community here is amazing and the people diagnosed with this diseased who take time to help people with care and...
  8. S

    27 Year Old Male please read

    Hi y’all thank you for taking the time out to read this ... I have been living in fear for almost 3 years and I feel like I have to post here now .. My worries Started back 2.5 years ago when I had body wide twitching.. since then I started to notice how sometimes I slur a word or 2.. Since that...
  9. B

    Advice needed from community. Medical mystery

    Hi all, https://www.alsforums.com/forum/do-i-have-als-als/41467-clean-clinical-exam-now-gait-abnormality.html Above is a link to my story till about May/June 2018. I have no idea what’s wrong with me, so I’m posting here looking for direction. I have seen multiple neurologists about my...
  10. B

    Worried since 3 months

    My problems started all 3 months ago. Everything was fine before. After some extensive jogging, my calfs felt stiff. Ok, thats maybe normal, i thought. But it didn`t disappear. Also, i mentioned twitching on both sides. After doing some more sports in the next two weeks, twitching was more...
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