clinical

  1. L

    On the verge of a breakdown ..all symptoms of Als

    A year ago I started feeling numbness and tingling in my leg and burning sensation in my head I did a brain MRI which showed corticospinal tract hyperintensities which are biomarkers of Als. Neurologists said no Als and related my symptoms to anxiety but symptoms exacerbated a lot.later I began...
  2. J

    Multiple symptoms for months

    Well for starters I found this website in a state of my panic and have read others threads about similar symptoms in a search for reassurance. I have been very apprehensive about posting here because I know a lot of people are probably just overexcited or scared and have convinced themselves...
  3. A

    Hoping for a little reassurance

    Good evening, everyone, First off, I have been constantly amazed at the grace and promptness with which questions from anxious people here are answered, and in my time lurking over the last couple months these replies and stickied threads have been a huge resource. So thank you! I'm just...
  4. Nikki J

    PALS chat thread ( PALS only please)

    Hi everyone I am starting this thread again. We PALS have been too quiet! Please continue to start threads when you have a specific issue or if you have something to contribute or discuss that you would have put in the non clinical area still do so. This is more just to chat among friends-...
  5. C

    Tongue fasciculations that I can see but can’t feel.

    Hello everyone, and thank you for your time to read this and respond. I will be making a donation when I get paid. I’m 28 years old and have had twitches for 3 months. And yes I read the thread that if I have twitches read this first. The problem is that I have terrible health insurance and...
  6. Kristina1

    mexiletine side effects please advise

    Hi I was hoping others who are on or have tried mexiletine could chime in with their experience. Apologies in advance for the length of this post. Background: I'm in the AMX0035 (amylyx) clinical trial in the open label phase meaning we know for sure I am receiving the real drug. I was told...
  7. A

    Age 20, EMG probable ALS ?

    Hey everyone, I am 20 years old, I have alwaya been twtiching mildly across my calves and maybe other parts too, did not pay attention to it. However 8 months ago I started twitching in my tricep, localy, it was a hotspot which lasted on and off 2 months. It vanished after and now I mainly get...
  8. K

    ALS symptoms?

    Hi all, I’ve been lurking for a while but have been hesitant to post because I don’t want to upset anyone by jumping the gun. I’ll try and make this short but I just need some insight into what I’m experiencing. It started with twitching that I noticed going on two months ago. The twitches...
  9. G

    Six Months - Many Symptoms - No Answers

    Hello, Like many others I have been visiting this message board after experiencing symptoms that led me to the internet - that led me here. I have read many posts and many stories on this site and have much respect for this wonderful forum. I will try not to make this a long and hard to read...
  10. K

    Club membership at hand

    Well, damn. My local neurologist, after two months of elimination tests, has now indicated likely NMD, with ALS being the most likely candidate. He basically kicked the can down the road and referred me to Dr. Pulley at Jacksonville Shands. We see him in late April for a second EMG and opinion...
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