Hi, I have a question about clinical trials . My husband has ALS and has been taking Riluzole 50 mg and Relyvrio 3-1 g pack . He would like to go in to a clinical trial but not sure where or how to begin it. I see there are some new drugs that seem hopeful but how do you get into them? I talked...
A year ago I started feeling numbness and tingling in my leg and burning sensation in my head
I did a brain MRI which showed corticospinal tract hyperintensities which are biomarkers of Als. Neurologists said no Als and related my symptoms to anxiety but symptoms exacerbated a lot.later I began...
Well for starters I found this website in a state of my panic and have read others threads about similar symptoms in a search for reassurance. I have been very apprehensive about posting here because I know a lot of people are probably just overexcited or scared and have convinced themselves...
Good evening, everyone,
First off, I have been constantly amazed at the grace and promptness with which questions from anxious people here are answered, and in my time lurking over the last couple months these replies and stickied threads have been a huge resource. So thank you!
I am starting this thread again. We PALS have been too quiet!
Please continue to start threads when you have a specific issue or if you have something to contribute or discuss that you would have put in the non clinical area still do so.
This is more just to chat among friends-...
Hello everyone, and thank you for your time to read this and respond. I will be making a donation when I get paid. I’m 28 years old and have had twitches for 3 months. And yes I read the thread that if I have twitches read this first. The problem is that I have terrible health insurance and...
Hi I was hoping others who are on or have tried mexiletine could chime in with their experience. Apologies in advance for the length of this post.
Background: I'm in the AMX0035 (amylyx) clinical trial in the open label phase meaning we know for sure I am receiving the real drug. I was told...
I am 20 years old, I have alwaya been twtiching mildly across my calves and maybe other parts too, did not pay attention to it. However 8 months ago I started twitching in my tricep, localy, it was a hotspot which lasted on and off 2 months. It vanished after and now I mainly get...
I’ve been lurking for a while but have been hesitant to post because I don’t want to upset anyone by jumping the gun.
I’ll try and make this short but I just need some insight into what I’m experiencing. It started with twitching that I noticed going on two months ago. The twitches...
Good evening. After reading the stickies, I am still left with some questions. Here’s where I am at—
1. I have had body-wide twitching for about 6 weeks. It seems to be mostly in my legs now, with some in my face , back, and arms (not often). The twitching occurs on both sides. Some days...