ShiftKicker
Moderator
- Joined
- Mar 16, 2015
- Messages
- 8,421
- Reason
- DX UMND/PLS
- Diagnosis
- 06/2015
- Country
- CA
- State
- BC
- City
- Vancouver
Hello-
Just thought I'd introduce myself here. I had asked a few questions on the DIHALS thread previously, but am now reluctantly part of the general population here.
I have been told by two separate neurologists, one of whom is a BC ALS clinic director, that I have either PLS or UMN onset ALS- it's the waiting game. I'm 7 months in with mostly UMN symptoms, but spreading. Currently I have had little emotional reaction, as I've just been focusing on getting an actual firm diagnosis- so far it's just Motor Neuron disease. I have been referred to the ALS clinic here to access their resources, but am unsure when that will be. Currently I'm trying to figure out what to tell people, or if I even should, because of the lack of definitive diagnosis.
I am still ambulatory- with great difficulty- but am showing slight bulbar signs and mild arm/hand spasticity as well. I look at how you all are coping with every roadblock and crisis thrown your way, and can not help but admire the grace and humour you exhibit. I hope I will be able to exhibit the same.
Just thought I'd introduce myself here. I had asked a few questions on the DIHALS thread previously, but am now reluctantly part of the general population here.
I have been told by two separate neurologists, one of whom is a BC ALS clinic director, that I have either PLS or UMN onset ALS- it's the waiting game. I'm 7 months in with mostly UMN symptoms, but spreading. Currently I have had little emotional reaction, as I've just been focusing on getting an actual firm diagnosis- so far it's just Motor Neuron disease. I have been referred to the ALS clinic here to access their resources, but am unsure when that will be. Currently I'm trying to figure out what to tell people, or if I even should, because of the lack of definitive diagnosis.
I am still ambulatory- with great difficulty- but am showing slight bulbar signs and mild arm/hand spasticity as well. I look at how you all are coping with every roadblock and crisis thrown your way, and can not help but admire the grace and humour you exhibit. I hope I will be able to exhibit the same.