bulbar

  1. B

    Is this nasal regurgitation

    Very sorry to disturb You guys again. A scary new symptom arrived. For last three weeks whenever I eat or drink my back of nose become heavy. Whenever i eat rice or any fragmented food (like puffed rice) some small pieces comes in nose. when I blow nose that comes out. Is it nasal...
  2. J

    Question to bulbar pals

    i'm still fighting. started with a limb onset, spread all over my body, but took only my right foot. by now. maybe my lungs are weaker. it started in oct. 2018. with bulbar - i lost taste completely, continued to cough. it was not having any problems with breath by then, and my cough progressed...
  3. D

    Wholeheartedly Believe It's Bulbar Onset

    Hi All, I sincerely apologise for coming on here again. (Last here in 2012). I just wanted to put my thoughts down into words due to the worry it is causing. Firstly I’m a 34 year old male who is very overweight and leads a very sedentary lifestyle I have had a large variety of symptoms which...
  4. A

    Terrified of bulbar

    First I would like to thank everyone in this community that is being very supportive because I know your time is very valuable. I am a 25 year old male. It has been an ongoing battle with my mind for the past five years because ever since I turned 20 I would have twitches all over my body...
  5. I

    Very Fast Progression

    I was originally diagnosed with progressive bulbar palsy in January of 2018. At that time we were told that there was an excellent possibility of having several years before things really became troublesome. In April 2018 I had a PEG put in and speaking was no longer a possibility. My legs...
  6. R

    My wife (36y)

    Hi, 8 months ago we was on holiday, she run, rode a bike, walking 10km. In August she has started to have fasciculations in the thighs and with the index finger. In October she got damage to peripheral nerves diagnose without any motor neurons damages. In February this year we had new tests and...
  7. I

    Facial muscles

    I was diagnosed with progressive Bulbar Palsy I. January 2018. Although I could no longer swallow or speak by April of 2018, a PEG. helped and things were ok until Christmas of 2018. My limbs are weakening but I’m making the best of that. My biggest worry is my eyes. Even after sleeping well...
  8. C

    Questions about Symptoms/EMG

    Thank you all for taking the time to read my post and I would appreciate any advice or knowledge you can pass on. I have read the "before you post sticky". So this all started the the 1st week in Dec, I woke up 1 morning and had a persistent twitch in my left thigh. It prob went on 4-5 days...
  9. C

    Question About Symptoms/Emg

    This is my 1st post on this site and I want to say I really admire how nice and helpful everyone who responds on this site is. The fact that you take the time out of your days to help people who have questions is really remarkable. I've been looking at posts on this site for a few months and...
  10. S

    Is this tongue atrophy?

    Hi, I've been having strong tongue fasciculations for a while now. I have also noticed my tongue used to be round but now it looks like tongue atrophy from what I have seen. I initially thought it was a scalloped tongue but it looks too uneven for this. I also felt how thick each side of my...
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