pls

  1. R

    Recently diagnosed PLS

    A few weeks ago I was diagnosed with PLS variant. I was anticipating some sort of serious diagnosis but these are still hard words to get your head around. I have had significant breathing trouble and was started on a ventilator some months ago. I've had 2 opinions now from very senior and well...
  2. M

    Shortness of breath (PLS)

    Mother diagnosed with PLS, last month the EMG was still normal. This month she is complaining of shortness of breath. No issues eating, speaking, or swallowing. Can shortness of breath come first? My understanding was that this would be much later on. She is being seen at a clinic so I will ask...
  3. M

    Twitching with PLS?

    My mother is complaining of leg twitching at rest and early in the morning. She has PLS, in her legs and moving into her hands. She has shaky hands, and is dropping things, but really it’s the twitching in her legs that bothers her. She thinks it’s making them weaker, and she is having trouble...
  4. J

    Pls shoulders onset

    I got blocked for emailing members I won’t due it again. I have muscle wasting in my right shoulder it’s all bone and I have two frozen shoulders I can’t brush my hair put on jackets sweaters tops wash my hair. I read an old thread where frozen shoulder happens in a pls variant. Could this be pls?
  5. C

    Back after 5 years - (merge old thread pls)

    Hello everybody and sorry for everyone who has to deal with ALS. I greatly appreciate this community and don't want to take away precious time from anyone, but I have some questions which I would like answers to from people who unfortunately have the disease. First of all I was never supposed...
  6. J

    Please do not be too quick to say NO to possible ALS diagnosis

    About 3-4 years ago I came to this forum and asked the dreaded question "Do I have ALS". I had some fasciculations and cramping in my feet, balance issues, spasticity in both legs and slight speech changes. I was assured by members that my symptoms were NOT symptoms of ALS and I went merrily...
    • judy.king
    • Thread
    • als balance chair clinic cramping decline diagnosed diagnosis do i have als emg fasciculations foot foot drop medical mnd neurologist onset pls power questions speech symptoms symptoms of als tongue work
    • Replies: 5
    • Forum: Could this be ALS?
  7. M

    Is this Bulbar PLS/ALS?

    Hi so to start with I’m male age 26 So a few months ago I got rapid heartbeat tachycardia (I know not often a symptom of MND), They found no cardiac explanation, then started getting muscle twitches which I still get sometimes, again no obvious explanation. I noticed a panting in my throat...
    • Mrman
    • Thread
    • age als als? anxiety bulbar bulbar als choke clinical diagnosed eating emg mnd muscle muscle twitches neurologist pls problem swallow symptom tests tongue twitches twitching umn voice
    • Replies: 9
    • Forum: Could this be ALS?
  8. G

    Daignosed w. ALS, Then PLS

    Curiously two different Dr. looked at same EMG and came to a different conclusion. Any thoughts? (diagnosed with ALS, Dec. 24, 2018, diagnosed w. PLS 1/17/19)
  9. E

    On a PLS rating-scale and clinical trials

    Here is an interesting video: https://vimeo.com/278845845
  10. K

    Sorry to find myself here but glad I found you

    Finally, here. I have been a longtime lurker. I have been tempted to ask questions, but ultimately I decided to wait. And I waited for a long time. Having been finally diagnosed, I will let you know how everything began. In the spring of 2016, I started noticing some problems with my left...
    • Kafka
    • Thread
    • als atrophy balance breathing bulbar denervation diagnosed diagnosis emg family foot hyperreflexia life neurologist onset pls progression questions speech swallowing symptom symptoms test testing tests
    • Replies: 4
    • Forum: Newly diagnosed
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