unsure

  1. C

    Concerned about leg weakness and other symptoms.

    I'm hesitant to post here because of the seriousness of the disease in which I'm extremely anxious over, but I need guidance: I've been battling a bulging disc in my lower back since 2007 that gets irritated a few times a year. Flash back to middle of February and I aggravated it again, but...
  2. S

    Unsure how to approach symptoms

    Hello guys, I need some help here. I'll try to keep this as short as possible and before I start I will say that I've read the sticky. I'm a 25 year old male and for the last 11+ months I've been experiencing some really awful symptoms that (with some direction from my GP) has pointed me in the...
  3. 1

    In need of advice

    Hi. First of my heart goes out to all who are affected by such a terrible disease, friends and family members included. Now, I have been having an array of symptoms for sometime now. I am currently awaiting my appt for my Emg and I am a bit nervous. I would appreciate any advice about whether...
  4. Scotiaspirit

    Radicava Side effects

    I been on Edaravone (Radicava) since March of this year. I been experiencing brief periods of blurred vision (both eyes at the same time) during my weeks on treatment, but do not seem to have them during my rest periods. My nurses and doc has noted it, but are unsure if it is a related side...
  5. M

    Scared with family history

    After my fourth sleepless night I’ve decided to finally reach out. I am a 32 year old, seemingly healthy, mother to a two year old. At present I am VERY stressed. I will make no secret about that. Probably more stressed than I have ever been in my life. I work per diem, am a full time nursing...
  6. J

    Pinky/hand weakness

    I don't really know how to describe it but the toes on one of my foot feel very different. When I walk it feels like my toes are curled up, however it does not look like they actually are curled. When I try to flex or move my toes on that foot I notice they don't move as smoothly or as well as...
  7. J

    New Diagnosis

    New friends, My name is Jessi and my mother in law, Eileen, was just diagnosed with ALS about 3 weeks ago. She is a 2 time breast cancer survivor so they are unsure of whether or not her ALS is related to the radiation she underwent as a part of her cancer treatment or not. She lost total use...
  8. K

    Very Scared

    Hi Everyone, I hope that you're doing well. My name is Kevin and I have seen my Primary Care Physician and 3 Different Neurologists up until about a month and a half ago. About 6 months ago - I started noticing a pain in my left foot. I didn't think anything of it and it just kept getting...
  9. S

    Post electric shock

    I had an electric shock in September. We are unsure how severe it was but I did not black out. Immediately after I had weakness in my arm and leg (my hand was the point of contact, opposite foot was exit point) and a tingling feeling up my forearm. This pain lasted a few months and subsided, but...
  10. L

    Just found out my birth family suffers from C9 gene mutation. Please help!

    Hi, I was adopted when I was young and did not know my full medical history. I just discovered that the C9 mutation runs in my family. Over the last 4 years, 3 people have died from this - my uncle and aunt from ALS and my mom from FTD. I am unsure if anyone else is currently affected in my very...
Top