diagnosis

  1. Nikki J

    Webinar on how to talk to children about ALS diagnosis

    Another CCALS presentation. The speaker is from a program at mgh that helps PALS deal with this https://us02web.zoom.us/meeting/register/tZEvc--orjoqG93jVOmKhtacalRsb_6GNNeY
  2. M

    Relieved to get my dx on Wednesday

    Hi, some of you have already been helpful for me in my other thread (thanks). This past Wednesday, I went for EMG and nerve conduction at the ALS Center, where the director had told me categorically, at the tail end of August (after my own neurologist informed me in July that he suspected...
  3. L

    On the verge of a breakdown ..all symptoms of Als

    A year ago I started feeling numbness and tingling in my leg and burning sensation in my head I did a brain MRI which showed corticospinal tract hyperintensities which are biomarkers of Als. Neurologists said no Als and related my symptoms to anxiety but symptoms exacerbated a lot.later I began...
  4. M

    Rushed ALS Diagnosis ??

    First off, my heart goes out to all of you. You are so incredibly brave and generous with sharing your time, experience and support. My husband walked into a neurologist's office with symmetrical muscle weakness and walked out with a diagnosis of ALS. Some background - My husband is 51 and...
  5. J

    Awaiting diagnosis

    Hello. I started with foot drop about 6months ago. My left leg has gotten progressively worse and has moved to my R leg. Emg was bad showed decreased nerve conduction and muscle loss in both legs. I have brisk reflexes and positive Babinski on both sides. The neurologist agreed these...
  6. lisa g

    I would like to introduce myself

    My name is Lisa and I was diagnosed 1 week ago with ALS. My neurologist is such a compassionate person, she cried with me while giving me the diagnosis . Her and her husband are a neurologist team. While they suspected ALS the EMG confirmed it. I would like to say that they were fantastic with...
  7. J

    Please do not be too quick to say NO to possible ALS diagnosis

    About 3-4 years ago I came to this forum and asked the dreaded question "Do I have ALS". I had some fasciculations and cramping in my feet, balance issues, spasticity in both legs and slight speech changes. I was assured by members that my symptoms were NOT symptoms of ALS and I went merrily...
  8. D

    Frontolobe dimentia.

    heredity question Hello everyone. My first post. I'm Deb from Australia. scared to say much right now. I'm actually waiting for a diagnosis and "incidentally discovered my grandmother died of pneumonia secondary to ALS in 1970. I read in Google scholar that not all people with the faulty gene...
  9. E

    Strange symptoms

    I want to preface my first post here to say that my concern has led me to investigate about ALS in a way that makes me feel a deep sympathy for everyone affected by ALS (whether in his/her own flesh, or through a family member.) I also want to help those who make this forum possible. I will...
  10. G

    Six Months - Many Symptoms - No Answers

    Hello, Like many others I have been visiting this message board after experiencing symptoms that led me to the internet - that led me here. I have read many posts and many stories on this site and have much respect for this wonderful forum. I will try not to make this a long and hard to read...
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